Mark W. Leach

99% of people with Down syndrome say they are happy: so why are most Down’s babies aborted?

Mark W. Leach
By Mark Leach

October 12, 2011 (thePublicDisourse.com) - October is National Down Syndrome Awareness Month. Fittingly, the American Journal of Medical Genetics recently published groundbreaking research that challenges conventional wisdom about raising a child with Down syndrome (DS). Responding to these studies, noted bioethicist Art Caplan predicted that, nevertheless, they will not “make a bit of difference to parents deciding to end pregnancies once [DS] is discovered in the fetus.” Actual experience contradicts Caplan’s pessimism.

The new research reports the findings of three surveys in which thousands of parents and hundreds of siblings and individuals with DS themselves, were questioned about what it is like to be affected in one way or another by DS. Ninety-nine percent of parents said they loved their child with DS and 97 percent were proud of them; only 4 percent regretted having their child. While 4 percent of siblings would “trade their sibling” with DS, 96 percent indicated that they had affection toward their sibling with DS, with 94 percent of older siblings expressing feelings of pride. Finally, although 4 percent of individuals with DS expressed sadness about their lives, 99 percent said they were happy with their lives and 97 percent liked who they are.

Caplan believes that most mothers will still abort, even after this research has been released, simply because it is a fact that, currently, most mothers do abort following a prenatal diagnosis. This fact, however, does not support Caplan’s callous conclusion that “Down syndrome is almost universally seen as something to be avoided.”

The most recent studies find that there are more babies than ever being born with DS in the United States. Moreover, there are hundreds of families on waiting lists to adopt a child with DS. As for the high percentage of mothers who terminate, that does not support the conclusion that they are seeking to avoid DS.

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Certainly some are, but study after study has found that up to half of all women accepting prenatal testing did so without making an informed decision, and that half did not expect they would have to decide whether to abort following a prenatal diagnosis. To his credit, Caplan recognizes that prenatal testing can result in uninformed and unexpected decisions to terminate, due to medical professionals and general society often having “nothing good at all to say” about DS. Indeed, one study has found that almost a quarter of physicians actively urge abortion, or emphasize the negatives about DS in order to encourage it. Even for those committed to non-directive counseling, a majority of physicians and genetic counselors have said that they would abort following a prenatal diagnosis for DS, which no doubt affects how a diagnosis is presented. Other recent studies also have found that a significant percentage of adults, youths, and physicians still hold outdated views about DS and would prefer that children with DS were segregated from, rather than included in, the community and typical classrooms. Therefore, those who choose to abort often are seeking to avoid an inaccurate, uninformed, and overly negative view of a life with DS, which is not supported by the current research.

Caplan laments that this “climate for having kids with Down syndrome, happy though they may be, is not good.” But Caplan’s own words contribute to maintaining this lamentable climate.

Caplan writes as though aborting a fetus somehow avoids Down syndrome. An abortion will prevent a child from being born, but it will not prevent that child from having DS; DS occurs at conception. Caplan ends his column by stating that “an abortion for medical reasons is a highly personal decision.” Yet, there is not a medical reason for aborting because of a prenatal diagnosis for DS. DS does not pose a risk to the health of the mother or the child. (Caplan refers to heart and stomach defects that some children with DS have, but these can now almost always be treated surgically.)

Nevertheless, the climate of ignorance about, and prejudice against, DS does exist, which is why this new research needs to be shared with the medical community and with expectant parents. While Caplan calls for this, he is simply wrong to assume that sharing this information will not make a difference. The most influential information an expectant mother receives is from her physician and from written resources. Physicians should be well-informed about DS and provide accurate written materials to their patients. Ignorance and prejudice persist, however: over 80 percent of medical students are not trained in working with individuals with intellectual disabilities, and almost 60 percent of medical school deans do not believe they should be. Further, while most physicians now offer prenatal testing to all expectant mothers, less than a third provide them with educational materials.

This pervasive, self-imposed ignorance in the administration of prenatal testing for DS is contrary to ethical medical practice because it denies expectant parents the information they need to make informed decisions. The same studies that identified the pervasiveness of outdated views about DS also found that those who knew someone with DS were more accepting of DS, and that was true as well of physicians who knew someone with DS, as compared to those physicians who had not known any. Despite their rising birth rate, those with DS remain an incredibly small minority population. This is precisely why providing information about these new studies is so important, for most expectant parents and their physicians will not otherwise have or understand the positive experience of getting to know a person with DS.

The further significance of the new research is that it addresses the concerns of mothers who have aborted following a prenatal diagnosis. These mothers were concerned that the condition would be an excessive burden on them and their other children, and that DS may be too much of a burden for the child him- or herself. The three new studies directly counter these concerns and more, as they reveal a truth not often considered: a child with DS will almost always be a positive force in the lives of his or her parents and siblings. The studies found that 79 percent of parents felt that their outlook on life was more positive because of their child with DS. For siblings, the response was even greater, with 88 percent feeling that they were better people because of their siblings with DS.

The most recent practice guidelines call for sharing positive stories about DS, and the new research provides physicians with those positive stories. These stories do indeed matter. Kathryn Lynard Soper is the author of Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, which is an approved resource by the National Society of Genetic Counselors’ practice guidelines. The introduction to the book’s sequel, Gifts 2, presents compelling evidence of how sharing positive stories can and will make a difference. Soper writes of co-hosting a new parents’ workshop at the National Down Syndrome Congress convention. A woman holding a baby started the Q&A time with the following comment: “This is Grace. I just wanted you to know that if I hadn’t read your book, my daughter wouldn’t have been born.”

Contrary to Caplan’s opinion, DS is not something almost universally sought to be avoided. Moreover, sharing accurate information about DS, the newest of which is overwhelmingly positive, can and will change expectant parents’ views following a prenatal diagnosis. This is in the best interest not only of those who are conceived with Down syndrome, but also of those who are blessed to know them.


This article originally appeared on Public Discourse: Ethics, Law, and the Common Good, the online journal of the Witherspoon Institute of Princeton, NJ. It is reprinted here with permission. Mark W. Leach, Esq., is an attorney in Louisville, Kentucky, where he is pursuing a Master of Arts in Bioethics. He is the founder and chair of the Informed Decision Making Task Force for Down Syndrome Affiliates in Action and was a contributor to Gifts 2. The views expressed are entirely his own.

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Michael Lorsch, the real-life gay stripper hired by Canadian children's charity, Free the Children.
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,

So, a gay stripper walks into a top children’s charity and asks for a job…

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By Anthony Esolen

This week I'm taking a break from my essays on how to form in your children a wholesome moral imagination.  Instead I'd like to engage my readers in a fantasy of decadence.

Let's suppose that a prominent child-oriented charity in a once Christian nation hires somebody to meet with teenagers to encourage them to be “shameless idealists.”  Imagine that the pedagogue is a male stripper for a gay ho-down called Boylesque. 

At the Boylesque webpage, suppose you find a Mountie in a passionate kiss with a lumberjack, who is holding a bottle of beer foaming over. “Imagine your dearest Canadian icons,” say the Boylesque promoters, “stripped down and slathered in maple syrup for your viewing pleasure!”

Free the children? Teach them to blush. It's a good start.

The page features “Ray Gunn,” the Canadian “Mount-Me Police,” a rousing rendition of “O Canada” to make you “stand at attention,” an ad for a Valentine celebration of “debauch” at “our den of iniquity,” somebody named “Bruin Pounder,” somebody else named “Sigourney Beaver,” some stars of a “bisexual-athon,” and so forth. 

Imagine third-rate puns, puerile fascination with the parts down under, dopey titillation, debauchery, and “putting male nudity at center stage where it belongs.”

Now, let's see, what else can we add to this eye-rolling story? Suppose the boy-man who strips at Boylesque at night, after he works with girls and boys during the day, calls himself Mickey D Liscious. Let's give him an absurdly bogus education - a major in Sexuality Studies. Suppose the people who run the charity do more than look demurely aside from Mickey's mooning and lighting. They name him Rookie of the Year.

Now, to complicate the plot, suppose that people catch on to Mr. Liscious' nightly swinging, and complain to the charity. The directors say what cannot possibly be true.  They say they do not “discriminate” on the basis of what their employees do after hours. We presume that although whores and nudie wigglers may be welcome, people who write for conservative magazines would not be welcome, or embezzlers, pickpockets, bookies, loan sharks, dogfight promoters, or peddlers of contraband sealskin. The line has to be drawn somewhere. Prudence is a virtue. After all, we're dealing with boys and girls here. A priest who says, “Men and women are meant for one another, in marriage,” is to be shunned, but not somebody who simulates sex in front of hooting and howling strangers.

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Let's add the icing to the fantasy. We'll call the charity Free the Children, and we'll suppose that Free the Children encourages Mr. Mickey D Liscious to tell teenagers to be “shameless idealists.” 

Of course, everything in this tawdry and silly fantasy is fact. You can't make it up. No one would believe it.

You might suppose that I'd criticize Free the Children for its choice of Cool Child Companion, saying that he is the wrong boy to tell boys and girls to be “shameless idealists.” Mr. Liscious, for his part, believes that what he does at night and what he does during the day are of a piece, greasing the grooves and pistons of change. I take him at his word. He's right, and the directors of Free the Children agree. It's our turn to try to figure out what they mean.

By “idealist,” Mr. Liscious and his promoters do not mean “someone who believes that the immaterial is more real than the material.” Mickey is not giving lectures on Plato's Republic. They also do not mean, colloquially, “someone who believes in a high standard of personal virtue,” since such standards would deprive Boylesque of all those boys who like “a dirty flashmob” and “a Tim Horton's double-double served straight up.” They cannot mean that, because shame is what people with a strong sense of virtue often feel when they behave in a base or cowardly way.

The best they can mean is “unembarrassed promoters of some idea,” some fantasy of perfection upon earth, the Big Rock Candy Mountain, the dictatorship of the proletariat, a “better world,” and other gauzy dreams that earn you points at a beauty contest, while you tilt your head like a poodle and modulate your voice for caring and sharing. 

And all I can say is that the last hundred years have been stuffed to the eyeballs with shameless idealists: shameless ideologues. They had an idea, or an idea had them, and shame on them for it. The more wicked among them had names like Lenin, Stalin, Trotsky, Hitler, Pol Pot, and Khomeini. The more foolish had names like Harold Laski, who carried water for Lenin; Beatrice Webb, who carried water for Stalin; and Neville Chamberlain, who made a nice little pact with Hitler and proclaimed “Peace in our Time.”

Wilson was an idealist whose ideas got the better of his prudence and shame. We paid for that idealism in a crushed and belligerent Germany. The flower people of the sixties were idealists who scoffed at “hangups.” They could gaze upon the stars and sing about the Age of Aquarius, while their children looked to the empty place at table where Daddy or Mommy used to sit. Margaret Sanger was a shameless idealist. Hospital dumpsters are full of the result. 

We have had enough of shamelessness and foolish wars against reality.  

You cannot make “the world” a better place. The world is the world, old and stupid. Man is a sinner, and worst when he forgets that he is. That's not to say that you should sit and do nothing. Do the dishes. Read a good book. Be kind to your bothersome neighbor. Darken the church door and bend your knee in prayer.

Accept reality, and do the hard and unheralded work of cultivating virtue. Children are imprudent because they lack experience. Let them learn prudence from their elders. It takes no courage to follow the dreamy fad of the day, and children are suggestible. Let them learn the courage to resist the foolish and ephemeral. Children are often intemperate, because they're full of energy and so are given to hasty action and violent passions. Let them master and marshal their passions by subordinating them to right reason. Children see the world in stark oppositions of just and unjust. Let them keep their strong sense of justice, but let them temper it with the mercy that comes from acknowledgment of sin. Let shame instruct them in clemency.

Deny reality, dive deep into vice, and you will be a slave. Free the children? Teach them to blush. It's a good start.

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Florida Attorney General Pam Bondi
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‘I am just getting started’: Florida AG vows to defend marriage despite rulings

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By Dustin Siggins

Florida Attorney General Pam Bondi is not backing down in her effort to defend the state's marriage amendment, even in the face of five judicial decisions against it.

On Thursday, the same day that U.S. District Judge Robert Hinkle ruled the state's amendment was unconstitutional, Bondi told reporters that her continued defense of marriage was related to her "oath to defend the Constitution of the state of Florida."

"When I was sworn in as attorney general, the 37th attorney general of the state of Florida, I took an oath," continued Bondi. “Six years ago, by over 62 percent of the vote, the voters of this state put [the ban on same-sex marriage] into our Constitution. That is part of the Constitution, which I am sworn to uphold."

Bondi acknowledged Hinkle's ruling in her comments, including his "stay" of the ruling, and said that her continued defense of the law "is me doing my job as attorney general. And I will continue to do that and if anybody wants me to moderate my message or stand for less, I have a message for them: I am just getting started.”

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Bondi has taken fire for her defense of the state law. Critics point to her two divorces and a recent trip she took with her fiance as evidence of a double-standard, and in May she was heavily criticized for saying overturning the state's law would "impose significant public harm.” Same-sex "marriage" advocates took the comments as evidence that Bondi believes heterosexual relationships are superior to homosexual relationships.

Shortly after the uproar over Bondi's May statement, State Solicitor General Allen Winsor said in a statement that “Florida is harmed whenever a federal court enjoins enforcement of its laws, including the laws at issue here.”

“Florida’s voters approved a constitutional amendment, which is being challenged, and it is the attorney general’s duty to defend Florida law," he added.

Numerous studies, most prominently one done by Mark Regnerus in 2012, show that the best environment for children is that which consists of a married heterosexual couple.

Bondi joins a number of state attorneys general from both parties who are defending their state laws. Some Democratic attorneys general, perhaps most prominently Virginia's Mark Herring, have said they will not defend their state's marriage laws.

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Shock: UK mom abandons disabled daughter, keeps healthy son after twin surrogacy

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By Pete Baklinski

A UK woman who is the biological mother of twins born from a surrogate mom, has allegedly abandoned one of the children because she was born with a severe muscular condition, while taking the girl's healthy sibling home with her.

The surrogate mother, also from the UK — referred to as "Jenny" to protect her identity — revealed to The Sun the phone conversation that took place between herself and the biological mother over the fate of the disabled girl.

“I remember her saying to me, “She’d be a f****** dribbling cabbage! Who would want to adopt her? No one would want to adopt a disabled child,’” she said.

Jenny, who has children of her own, said she decided to become a surrogate to “help a mother who couldn’t have children.” She agreed to have two embryos implanted in her womb and to give birth for £12,000 ($20,000 USD).

With just six weeks to the due date, doctors told Jenny she needed an emergency caesarean to save the babies. It was not until a few weeks after the premature births that the twin girl was diagnosed with congenital myotonic dystrophy.

When Jenny phoned the biological mother to tell her of the girl’s condition, the mother rejected the girl.

Jenny has decided along with her partner to raise the girl. They have called her Amy.

“I was stunned when I heard her reject Amy,” Jenny said. “She had basically told me that she didn’t want a disabled child.”

Jenny said she felt “very angry” towards the girl’s biological parents. "I hate them for what they did.”

The twins are now legally separated. A Children and Family Court has awarded the healthy boy to the biological mother and the disabled girl to her surrogate.

The story comes about two weeks after an Australian couple allegedly abandoned their surrogate son in Thailand after he was born with Down syndrome, while taking the healthy twin girl back with them to Australia.

Rickard Newman, director of Family Life, Pro-Life & Child and Youth Protection in the Diocese of Lake Charles, called the Australian story a “tragedy” that “results from a marketplace that buys and sells children.”

“Third-party reproduction is a prism for violations against humanity. IVF and the sperm trade launched a wicked industry that now includes abortion, eugenics, human trafficking, and deliberate family fragmentation,” he said. 

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