Patrick Craine

EXCLUSIVE: Videos show ‘vegetable’ Baby Joseph reacting to parents

Patrick Craine
Patrick Craine

To join a Facebook page in support of the parents of Joseph Maraachli, click here.

LONDON, Ontario, February 24, 2011 (LifeSiteNews.com) - Dying one-year-old Joseph Maraachli’s family says two new videos of him flailing and reacting to tickling belie his hospital’s claim that he is in a permanent vegetative state.

The video of Joseph being tickled, which was shot Sunday evening only hours before the hospital had planned to remove his life support, also shows Joseph’s hands tied down - a measure the hospital took after Joseph removed the tube from his throat on at least two separate occasions.

“How can a baby be in a vegetative state who has his hands tied - as we speak - for him to not pull out his tube?” asked Joseph’s aunt, Samar Nader.  “How does a baby in a vegetative state respond to combing or tickling?”

“What really boggles my mind is how we’re not allowed to videotape him or have media outlets watching him to show the public what he’s like,” she added.  “That’s very frustrating.”

The family took Victoria Hospital in London to court last week to prevent them from removing his life support against their wishes, but Ontario Superior Court Justice Helen Rady sided with the hospital.  Her decision was based on doctors’ testimony that he is in a permanent vegetative state with no brain stem reflex.

But family members question the doctors’ judgment, saying Joseph is fully responsive to touch, particularly that he hates being touched by cold hands, tickles easily, and moves his head when his hair is brushed.  They also say he responds to loud noises by turning his head toward the sound.

Sam Sansalone, a spokesman for the family, says the fact that the hospital has had to tie his hands down shows “how absurd” the claim is that Joseph is in a vegetative state. 

“How could a supposedly persistent vegetative state child have so many occasions of purposeful neuromuscular movements of yanking out their uncomfortable air tube, so many times that hospital staff would have to tie his hands to prevent further episodes?” he asked.

Sansalone also says that hospital staff failed to note the tube removals in his chart.

Joseph suffers from a severe neurological disorder, but his specific condition remains undiagnosed.  Doctors have given him no chance of recovery, so his parents, Moe Maraachli and Sana Nader, have asked them to perform a tracheotomy which would enable him to breathe on his own, so that they could take him home.  The doctors have refused, saying the procedure is too risky.

Their daughter died from similar complications eight years ago, but in that case doctors performed a tracheotomy and they were able to take her home.

In January, the Consent and Capacity Board of Ontario sided with the hospital, a decision backed up by Justice Rady last Thursday.  The hospital appeared set to remove Joseph’s life support on Monday at 10 a.m., but that got delayed when the family hired expert lawyer Mark Handelman over the weekend with the financial support of the Euthanasia Prevention Coalition.

To make a donation to cover the legal costs please click here.

The family has been trying to have Joseph transferred to a hospital in the U.S., where they believe he’ll get better care or at least a reassessment, and possibly the tracheotomy they need to bring him home. 

The family has expressed concerns that hospital security is following them around and denying them private visitations with Joseph.

On Tuesday, Children’s Hospital of Michigan in Detroit, where the family had hoped to have Joseph transferred, refused to take him despite previous assurances that they would.  The family says, however, that they are far from out of options.

The clock is ticking for the family as Joseph’s current hospital has asked Ontario’s Office of the Public Guardian to assume decision-making power after the family refused to have Joseph’s life support removed on Monday.  The public guardian could order it removed at any point.

Alex Schadenberg, executive director of the Euthanasia Prevention Coalition, warned in a Fox news interview that the court decision facilitates a system where doctors are authorized to force life and death decisions on patients.  He has said he believes it is far worse than the “death panels” recently debated in the U.S. as part of the federal health care law.

He emphasized to LifeSiteNews last week that the family isn’t pushing for extraordinary treatment, just asking to care for their dying child at home.  “They’re arguing that the best way to do that is by doing a tracheotomy so the child can somewhat breathe on his own and care for him while he’s dying,” he explained.

“It’s the hospitals and the doctors once again usurping their power over the people,” he said.  “That’s what’s happening.  And they have significant power - they have the money and the courts behind them.  It’s absolutely ridiculous.”

Over 9,000 people have rallied behind the parents through the Facebook page “Save baby Joseph”.

To make a donation to cover the legal costs please click here.

To join a Facebook page in support of the parents of Joseph Maraachli, click here.


Contact Information:

Bonnie Adamson
President and CEO, London Health Sciences Centre
800 Commissioners Road East
London, Ontario Canada N6A 5W9
Phone: 519-685-8462
E-mail: bonnie.adamson@lhsc.on.ca

Dalton McGuinty, Premier
Legislative Building
Queen’s Park
Toronto ON M7A 1A1
Fax: (416) 325-3745
E-mail: Use this form.

Tim Hudak, Opposition Leader
The Ontario PC Party
19 Duncan Street
Suite 401
Toronto, ON M5H 3H1
Phone: 416-861-0020
Toll-free: 1-800-903-6453
Fax: 416-861-9593
Email: tim.hudakco@pc.ola.org

See Composing Effective Communications in Response to LifeSiteNews Reports.


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Michelle Kaufman, New Zealand Correspondent

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Abortion group targets pro-life doctors, nurses with new website: New Zealand

Michelle Kaufman, New Zealand Correspondent
By Michelle Kaufman

Pro-life health practitioners and crisis pregnancy centres in New Zealand are the target of a new website designed to intimidate those who choose not to refer for abortion or prescribe contraception.

The website, My Decision, is created by the Abortion Law Reform Association of New Zealand (ALRANZ). 

The site lists health practitioners and crisis pregnancy centres which they believe women should avoid.  The incomplete list includes the names of individuals or organisations, the region and town, and whether they are a doctor, nurse or other provider. 

Women are asked to submit their stories of “hostile or unhelpful health professionals.”  The stories are non-identifying and can be edited for length or clarity.  At the time of writing only two stories had been posted.

In an earlier blog post, ALRANZ mentioned that the new website, which was still under construction at the time, is “aimed at shining the light on ‘conscientious objectors’… who deny people the reproductive healthcare they want or need.”

Right to Life NZ says they believe the site is “denigrating the good name and reputations of health professionals who believe that abortion is a harmful choice.”

Click "like" if you are PRO-LIFE!

Under New Zealand law, health practitioners can object to providing reproductive health services according to their conscience.  However, there is one caveat – they “must inform the person who requests the service that he or she can obtain the service from another health practitioner or from a family planning clinic.”

 “Sonscientious objection is a fundamental right and one that must be preserved if we are to continue to live in a free and civil society,” said Chris O’Brien, Vice President of Right to Life NZ. “We risk tyranny if this right is taken away.”

“There are very good doctors that appear on that website” said Dame Colleen Bayer, whose Dunedin Family Life Crisis Pregnancy Centre is also named.  “These doctors speak truthfully and have real care and concern for their patients.  Women do themselves a disservice to discount them based on this information.”

The resource section on the My Decision website links to ALRANZ, Family Planning (an affiliate of International Planned Parenthood Federation and an abortion provider), and the website Abortion Services in New Zealand. 

The Abortion Services website is sponsored by ISTAR Ltd, a registered Charitable Trust which is the sole importer of mifepristone into New Zealand.  ISTAR also provides Manual Vacuum Aspiration equipment for early surgical abortions.

ALRANZ, was instrumental in the writing of the Greens abortion policy, which was unveiled earlier this year.  That policy aims to take abortion out of the Crimes Act making it more accessible.  The policy also targets health professionals who may conscientiously object to ensure they refer patients on to a “neutral practitioner”.

More information about freedom of conscience in healthcare 


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The government is proposing allowing the killing of pre-born babies suspected of being disabled and those conceived through rape or incest.
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Northern Ireland considers allowing killing disabled unborn babies: pro-lifers condemn

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By Thaddeus Baklinski

Northern Ireland’s leading pro-life group, Precious Life, has condemned this week's announcement by Justice Minister David Ford that a consultation on changing the abortion law will be "ready by autumn." The government is considering allowing the killing of pre-born babies suspected of being disabled and those conceived through rape or incest.

“Abortion is a serious criminal offence in Northern Ireland,” said the director of Precious Life, Bernadette Smyth. “The law here protects unborn babies, and David Ford as Minister for Justice must ensure that all children are legally protected."

Last December, Ford revealed he would be undertaking a consultation to consider changes to the law after he heard the stories of two women, who complained that they had not been allowed to abort their babies who had been diagnosed with anencephaly. Instead, they said, they had traveled to Britain for abortions.

Abortion was refused under Northern Ireland’s laws because the diagnosis of anencephaly for the child poses no medical threat to the mother.

Click "like" if you are PRO-LIFE!

On Monday Ford told the BBC that the Department of Justice would bring forward its consultation paper on changing Northern Ireland's abortion laws by the fall.

However, Smyth warned that “the core ethical principle which must underpin this discussion is that every child deserves the right to life regardless of how short their life may be, and regardless of the circumstances of their conception."

She vowed that Precious Life will launch a public campaign in support of the life of all unborn babies.

“We all feel enormous sympathy for parents in these traumatic and distressing cases," Precious Life stressed in a statement. "But parents in these difficult situations deserve much more than our sympathy – they need a professional support system in place, which will provide them with help, support and resources.

"Precious Life are resolved to work towards a solution that loves and protects both mother and baby. Once again we call on the Health Minister to immediately establish perinatal hospice services for parents who have received a poor or difficult prenatal diagnosis for their baby,” said Smyth.

 

Contact:

Justice Minister David Ford
Department of Justice
Stormont Estate
Belfast, Northern Ireland
BT4 3SG
Phone:(028) 9076 3000
Email: via website (http://www.dojni.gov.uk/contact-us.htm)


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80% of parents who have an unborn child with spina bifida choose abortion. But Chad Judice (pictured with Eli) knows that life is worth it.
Dustin Siggins Dustin Siggins Follow Dustin

Abortion? No way. Dad says son with spina bifida is a ‘gift’ to the family.

Dustin Siggins Dustin Siggins Follow Dustin
By Dustin Siggins

What is the most pro-life, pro-God influence in your life? According to Catholic author and speaker Chad Judice, his five-year old, disabled son has been a tremendous source of happiness and faith for even the hardest of hearts.

In an op-ed published in The New York Post, Judice writes that when he and his wife found out their unborn son Elijah had spina bifida, they were offered the option of abortion. While they chose life, it didn't stop them from fearing the worst for their careers, eldest child, and Eli.

"That evening...Ashley cried as she read to me from the literature we’d been given," writes Judice. "It said 80 percent of parents who receive a spina bifida diagnosis choose abortion."

"And it told us that our son might have learning disabilities and be paralyzed from the waist down, unable to ever walk."

According to WemMD.com, the two most common forms of spina bifida have few, if any effects, on those who have them. However, the most rare and most aggressive form of the disability can result in significant problems for life:

  • Little or no feeling in their legs, feet, or arms, so they may not be able to move those parts of the body.
  • Bladder or bowel problems, such as leaking urine or having a hard time passing stools.
  • Fluid buildup in the brain (hydrocephalus). Even when it is treated, this may cause seizures, learning problems, or vision problems.
  • A curve in their spine, such as scoliosis.

Eli's form of spina bifida was severe, but -- as it turned out -- manageable, writes Judice. Despite surgeries and "medical challenges," he was out of the hospital within thirty days, though seizures and surgeries would continue to challenge the family. At five-and-a-half, he is entering kindergarten, learning to walk with modern technology, and "his intelligence is at or above average, and he's very talkative."

But perhaps the greatest miracle of all, Judice says, is the effect Eli has had on those who are outside of the family. His story has helped "some pregnant mothers...to reject abortion," and "rekindle the dormant faith of some...drawing them into a life with more room for God and family."

One of those rekindled Christians was a man who, after years in prison, prayed for Eli "as he recited The Lord's Prayer." According to Judice, "it was the first time he’d prayed in 30 years."

Since Eli's birth, Judice has written two books about his son and their family. "Waiting for Eli: A Father's Journey from Fear to Faith" was the first, and has received praise from Father Frank Pavone of Priests for Life. According to Pavone, it is "an inspiring story of faith, hope, love, and the power of prayer."

"The world judges the value of human life by physical perfection, but God sees things differently. To Him, we are perfectly lovable in our imperfection. Uplifting in its reverence for human life in its most fragile stages, WAITING FOR ELI will encourage pro-life activists everywhere, from the most seasoned to the newly initiated."

Also unstinting in praise was the Chair of the Committee for Pro-Life Activities, Archbishop Daniel Cardinal Dinardo, who writes for Judice's website that the book "chronicles [Judice's] spiritual journey from fear of one’s personal limitations to self-abandonment to the divine mercy of God’s providence."

The second book, "Eli's Reach: On the Value of Human Life and the Power of Prayer," received the "Best Book by Small Publisher" award in 2013 by the Catholic Press Association.

"I think of Eli as God’s special gift to my family," Judice wrote in the Post. "And as I share about him, Eli’s story softens hearts and brings people to a greater appreciation of the beauty and sacredness of life."


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