Mark W. Leach

99% of people with Down syndrome say they are happy: so why are most Down’s babies aborted?

Mark W. Leach
By Mark Leach

October 12, 2011 (thePublicDisourse.com) - October is National Down Syndrome Awareness Month. Fittingly, the American Journal of Medical Genetics recently published groundbreaking research that challenges conventional wisdom about raising a child with Down syndrome (DS). Responding to these studies, noted bioethicist Art Caplan predicted that, nevertheless, they will not “make a bit of difference to parents deciding to end pregnancies once [DS] is discovered in the fetus.” Actual experience contradicts Caplan’s pessimism.

The new research reports the findings of three surveys in which thousands of parents and hundreds of siblings and individuals with DS themselves, were questioned about what it is like to be affected in one way or another by DS. Ninety-nine percent of parents said they loved their child with DS and 97 percent were proud of them; only 4 percent regretted having their child. While 4 percent of siblings would “trade their sibling” with DS, 96 percent indicated that they had affection toward their sibling with DS, with 94 percent of older siblings expressing feelings of pride. Finally, although 4 percent of individuals with DS expressed sadness about their lives, 99 percent said they were happy with their lives and 97 percent liked who they are.

Caplan believes that most mothers will still abort, even after this research has been released, simply because it is a fact that, currently, most mothers do abort following a prenatal diagnosis. This fact, however, does not support Caplan’s callous conclusion that “Down syndrome is almost universally seen as something to be avoided.”

The most recent studies find that there are more babies than ever being born with DS in the United States. Moreover, there are hundreds of families on waiting lists to adopt a child with DS. As for the high percentage of mothers who terminate, that does not support the conclusion that they are seeking to avoid DS.

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Certainly some are, but study after study has found that up to half of all women accepting prenatal testing did so without making an informed decision, and that half did not expect they would have to decide whether to abort following a prenatal diagnosis. To his credit, Caplan recognizes that prenatal testing can result in uninformed and unexpected decisions to terminate, due to medical professionals and general society often having “nothing good at all to say” about DS. Indeed, one study has found that almost a quarter of physicians actively urge abortion, or emphasize the negatives about DS in order to encourage it. Even for those committed to non-directive counseling, a majority of physicians and genetic counselors have said that they would abort following a prenatal diagnosis for DS, which no doubt affects how a diagnosis is presented. Other recent studies also have found that a significant percentage of adults, youths, and physicians still hold outdated views about DS and would prefer that children with DS were segregated from, rather than included in, the community and typical classrooms. Therefore, those who choose to abort often are seeking to avoid an inaccurate, uninformed, and overly negative view of a life with DS, which is not supported by the current research.

Caplan laments that this “climate for having kids with Down syndrome, happy though they may be, is not good.” But Caplan’s own words contribute to maintaining this lamentable climate.

Caplan writes as though aborting a fetus somehow avoids Down syndrome. An abortion will prevent a child from being born, but it will not prevent that child from having DS; DS occurs at conception. Caplan ends his column by stating that “an abortion for medical reasons is a highly personal decision.” Yet, there is not a medical reason for aborting because of a prenatal diagnosis for DS. DS does not pose a risk to the health of the mother or the child. (Caplan refers to heart and stomach defects that some children with DS have, but these can now almost always be treated surgically.)

Nevertheless, the climate of ignorance about, and prejudice against, DS does exist, which is why this new research needs to be shared with the medical community and with expectant parents. While Caplan calls for this, he is simply wrong to assume that sharing this information will not make a difference. The most influential information an expectant mother receives is from her physician and from written resources. Physicians should be well-informed about DS and provide accurate written materials to their patients. Ignorance and prejudice persist, however: over 80 percent of medical students are not trained in working with individuals with intellectual disabilities, and almost 60 percent of medical school deans do not believe they should be. Further, while most physicians now offer prenatal testing to all expectant mothers, less than a third provide them with educational materials.

This pervasive, self-imposed ignorance in the administration of prenatal testing for DS is contrary to ethical medical practice because it denies expectant parents the information they need to make informed decisions. The same studies that identified the pervasiveness of outdated views about DS also found that those who knew someone with DS were more accepting of DS, and that was true as well of physicians who knew someone with DS, as compared to those physicians who had not known any. Despite their rising birth rate, those with DS remain an incredibly small minority population. This is precisely why providing information about these new studies is so important, for most expectant parents and their physicians will not otherwise have or understand the positive experience of getting to know a person with DS.

The further significance of the new research is that it addresses the concerns of mothers who have aborted following a prenatal diagnosis. These mothers were concerned that the condition would be an excessive burden on them and their other children, and that DS may be too much of a burden for the child him- or herself. The three new studies directly counter these concerns and more, as they reveal a truth not often considered: a child with DS will almost always be a positive force in the lives of his or her parents and siblings. The studies found that 79 percent of parents felt that their outlook on life was more positive because of their child with DS. For siblings, the response was even greater, with 88 percent feeling that they were better people because of their siblings with DS.

The most recent practice guidelines call for sharing positive stories about DS, and the new research provides physicians with those positive stories. These stories do indeed matter. Kathryn Lynard Soper is the author of Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, which is an approved resource by the National Society of Genetic Counselors’ practice guidelines. The introduction to the book’s sequel, Gifts 2, presents compelling evidence of how sharing positive stories can and will make a difference. Soper writes of co-hosting a new parents’ workshop at the National Down Syndrome Congress convention. A woman holding a baby started the Q&A time with the following comment: “This is Grace. I just wanted you to know that if I hadn’t read your book, my daughter wouldn’t have been born.”

Contrary to Caplan’s opinion, DS is not something almost universally sought to be avoided. Moreover, sharing accurate information about DS, the newest of which is overwhelmingly positive, can and will change expectant parents’ views following a prenatal diagnosis. This is in the best interest not only of those who are conceived with Down syndrome, but also of those who are blessed to know them.


This article originally appeared on Public Discourse: Ethics, Law, and the Common Good, the online journal of the Witherspoon Institute of Princeton, NJ. It is reprinted here with permission. Mark W. Leach, Esq., is an attorney in Louisville, Kentucky, where he is pursuing a Master of Arts in Bioethics. He is the founder and chair of the Informed Decision Making Task Force for Down Syndrome Affiliates in Action and was a contributor to Gifts 2. The views expressed are entirely his own.


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Medical staff arrested in India after accidentally aborting baby at 8 months

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By Thaddeus Baklinski

A doctor and a nurse at a prominent private hospital in India have been arrested after they allegedly administered abortion drugs to a eight-months pregnant accidentally, resulting in the death of her unborn child.

"We have immediately registered a case and arrested the doctor, whose negligent act has caused this," said South Jammu Superintendent of Police Rahul Malik, according to the Hindustan Times.

The woman's husband, Rakesh Sharma, told the paper that the doctor mistook Shruti Sharma for another patient who was scheduled for an abortion at the JK Medicity Hospital in Jammu on Friday afternoon.

Shruti had gone to the hospital after her gynecologist advised a routine medical examination to safeguard her and her baby's health.

Rakesh alleged that the doctor gave his wife the abortion pills without consulting her medical records. “Doctors and paramedical staff instead of administering glucose, gave her abortion medicine, which was actually meant for another patient,” he said.

"It is the worst case of negligence. I feel strongly that such hospitals should be closed. If this has happened to me today, tomorrow it can happen to any body else," Rakesh said.

While the JK Medicity's administration said it has launched an inquiry into the incident, a report from the Jagran Post stated that the district government has revoked the hospital's license.

"Jammu and Kashmir Government has ordered sealing of the private clinic after suspension of its license to operate in the wake of the incident," said Minister for Health and Medical Education Taj Mohiuddin according to the report.

National media have reported that the incident has brought illegal abortion practices in India to the attention of both the public and government officials.

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According to the Medical Termination of Pregnancy Act, abortion is legal in India up to 20 weeks. However, the opinion of a second doctor is required if the pregnancy is past its 12th week, and abortion-inducing drugs such as mifepristone and misoprostol are allowed only by prescription up until the seventh week of pregnancy.

Moreover, abortions can be performed only in government licensed medical institutions by registered abortionists.

Indian Express reported that the accused in the incident, Dr Amarjeet Singh, practices ayurvedic medicine (traditional Hindu medicine) and is "unsuitable for carrying out abortions."

A video posted by IndiaTV shows the parents surrounded by family members and relatives at a protest outside the JK Medicity hospital where the group is demanding punishment for those involved in the death of the child.


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News editor fired for criticizing ‘gay Bible’, files complaint

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By Kirsten Anderson

The former editor-in-chief of Iowa’s Newton Daily News has filed a religious discrimination complaint after he was fired over a post on his private blog criticizing the pro-gay Queen James Bible.

The Bible revision was produced by homosexual activists who claim to have edited the eight most commonly cited verses against homosexual behavior “in a way that makes homophobic interpretations impossible.”

On his private blog, which has since been deactivated, Bob Eschliman wrote in April that “the LGBTQXYZ crowd and the Gaystapo” are trying to reword the Bible “to make their sinful nature ‘right with God.’”

After public outcry from homosexual activists, Shaw Media, which owns the paper, fired him on May 6.

In a statement the day of his firing, Shaw Media President John Rung said Eschliman’s “airing of [his opinion] compromised the reputation of this newspaper and his ability to lead it.”

“There will be some who will criticize our action, and mistakenly cite Mr. Eschliman’s First Amendment rights as a reason he should continue on as editor of the Newton Daily News,” Rung said.  “As previously stated, he has a right to voice his opinion. And we have a right to select an editor who we believe best represents our company and best serves the interests of our readers.”

Rung said the company has a duty “to advocate for the communities we serve” and that “to be effective advocates, we must be able to represent the entire community fairly.”

Eschliman, who has been writing professionally since 1998 and became editor-in-chief of the Newton Daily News in 2012, says that the company was aware of his personal blog when he was hired and never indicated it would be a problem for him to continue sharing his personal political and religious views.

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In his religious discrimination complaint against the company, filed with the Equal Employment Opportunity Commission (EEOC), he says that he believes he was singled out for termination because of his Christian views concerning homosexuality and same-sex “marriage.”

“As a lifelong writer, I have maintained a personal blog on the Internet with some personal thoughts and writings,” Eschliman wrote. “Newton Daily News, my employer, never had a policy prohibiting personal blogging, Twitter, Facebook, or any other social media. In fact, my employer encouraged us to engage in social media on a personal level and I am aware of several employees of Newton Daily News who continue to blog and are still employed with Shaw Media.”

“There is no question that I was fired for holding and talking about my sincerely held religious beliefs on my personal blog during my off-duty time from the comfort of my own home,” Eschliman wrote. “Shaw Media directly discriminated against me because of my religious beliefs and my identity as an evangelical Christian who believes in Holy Scripture and the Biblical view of marriage.

“Moreover, Shaw Media announced that not only were they firing me based upon my religious beliefs, but that they would not hire or allow anyone to work at Shaw Media who holds religious beliefs similar to mine, which would include an automatic denial of any accommodation of those who share my sincerely held religious beliefs,” he added.

Neither Shaw Media nor the Newton Daily News have been willing to provide further comment to the press on the matter, citing pending litigation.

Matthew Whitaker, an attorney with Liberty Institute who is assisting Eschliman with his complaint, said the law is on his client’s side.

“No one should be fired for simply expressing his religious beliefs,” Whitaker said in a statement. “In America, it is against the law to fire an employee for expressing a religious belief in public.  This kind of religious intolerance by an employer has no place in today’s welcoming workforce.”

According to Whitaker, if the EEOC rules in Eschliman’s favor, Shaw Media could be forced to give him back pay, front pay, and a monetary settlement.


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If you find this filthy book in your home, burn it

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By Jonathon van Maren

I don’t believe in book-burnings, but for the 50 Shades of Grey Trilogy, I’ll make an exception. I prefer charred books to scarred people.

The 50 Shades of Grey Trilogy, for those of you living outside “civilization,” is a repulsive and poisonous stack of porn novels that celebrates the seduction and manipulation of an insecure girl by a powerful businessman who happens to like spending his recreational time engaging in what is now popularly known as “BDSM.” For those of you who are fortunate enough never to have heard of this glorification of sexual assault, the acronym stands for bondage, domination, sadism, and masochism. In 50 Shades of Grey, the man in question inflicts all sorts of pain on the girl, because he is a sadist, which used to be a bad thing. (How utterly confusing it is to see the “feminists” of Planned Parenthood and elsewhere celebrating this phenomenon—wasn’t domination something they sought to subvert? Didn’t bondage used to be something one wanted to be freed from? And sado-masochism—I could vomit.) And now this trash has been developed into a film, the trailer of which is all over Facebook.

50 Shades of Grey and the new “BDSM” phenomenon are nothing more than the celebration of pain, rape, and destruction.

A lot of people seem to be taken with these books, especially based on the number of people I’ve seen unashamedly reading it at airports. These porn novels are “hot,” many reviewers tell us confidently. Yes, hot as Hell and halfway there, I think.

Consider this, for just a moment: In a culture where broken families are often the norm, we have a generation of girls often growing up without fathers, never receiving the paternal love and affection that they need. Thus the famous “Daddy Issues” that so many comedy sitcoms repulsively mock, as if hurting girls seeking love and affection in all the wrong places is some sort of joke. Conversely, boys are also growing up without fathers, never having a positive male role model in the home to teach them how to treat women with love and respect. And what is teaching them how to treat girls? At an enormous rate, the answer is online pornography, which increasingly features vicious violence against girls and women. The average first exposure of boys to pornography is age eleven. It is an absolutely toxic mess—insecure and hurting girls seek love from boys who have been taught how to treat them by the most vicious of pornography.

Introduce into this situation a book, written by a woman, glorifying the idea that girls should expect or even enjoy pain and torture inside of a sexual relationship. How does a girl, insecure and unsure, know what to think? The culture around her now expects her not to need a safe relationship, but a “safe word” to employ in case her sadist partner gets a bit too carried away in the pain-making. Boys who might never have dreamed of asking a girl to subject herself to such pain and humiliation are now of course emboldened to request or even expect this fetishized sexual assault as a matter of course in a relationship. After all, much of pornography now features this degradation of girls and women, and a woman wrote a book celebrating such things. It might seem sadistic and rapey, but hey, sexual freedom has allowed us to celebrate “bondage” and sexual liberation has allowed us to liberate our darkest demons from the recesses of our skulls and allow them out to play in the bedroom. Boys used to get taught that they shouldn’t hit girls, but now the culture is telling them that it’s actually a turn-on.

I genuinely feel sorry for many teenage girls trying to navigate the new, pornified dating landscape. I genuinely feel sorry for the legions of fatherless boys, exposed to pornography before they even had a chance to realize what it was, enfolded by the tentacles of perverted sexual material before they even realize what, exactly, they are trifling with. It brings to mind something C.S. Lewis once wrote: “Wouldn't it be dreadful if some day in our own world, at home, men start going wild inside, like the animals here, and still look like men, so that you'd never know which were which.”

50 Shades of Grey and the new “BDSM” phenomenon are nothing more than the celebration of pain, rape, and destruction. Find out if the “sex educators” in your area are pushing this garbage, and speak out. Join campaigns to make sure that promotion of this filth isn’t being funded by your tax dollars. And if you find these books in your home, burn them.


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