Mark W. Leach

99% of people with Down syndrome say they are happy: so why are most Down’s babies aborted?

Mark W. Leach
By Mark Leach

October 12, 2011 (thePublicDisourse.com) - October is National Down Syndrome Awareness Month. Fittingly, the American Journal of Medical Genetics recently published groundbreaking research that challenges conventional wisdom about raising a child with Down syndrome (DS). Responding to these studies, noted bioethicist Art Caplan predicted that, nevertheless, they will not “make a bit of difference to parents deciding to end pregnancies once [DS] is discovered in the fetus.” Actual experience contradicts Caplan’s pessimism.

The new research reports the findings of three surveys in which thousands of parents and hundreds of siblings and individuals with DS themselves, were questioned about what it is like to be affected in one way or another by DS. Ninety-nine percent of parents said they loved their child with DS and 97 percent were proud of them; only 4 percent regretted having their child. While 4 percent of siblings would “trade their sibling” with DS, 96 percent indicated that they had affection toward their sibling with DS, with 94 percent of older siblings expressing feelings of pride. Finally, although 4 percent of individuals with DS expressed sadness about their lives, 99 percent said they were happy with their lives and 97 percent liked who they are.

Caplan believes that most mothers will still abort, even after this research has been released, simply because it is a fact that, currently, most mothers do abort following a prenatal diagnosis. This fact, however, does not support Caplan’s callous conclusion that “Down syndrome is almost universally seen as something to be avoided.”

The most recent studies find that there are more babies than ever being born with DS in the United States. Moreover, there are hundreds of families on waiting lists to adopt a child with DS. As for the high percentage of mothers who terminate, that does not support the conclusion that they are seeking to avoid DS.

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Certainly some are, but study after study has found that up to half of all women accepting prenatal testing did so without making an informed decision, and that half did not expect they would have to decide whether to abort following a prenatal diagnosis. To his credit, Caplan recognizes that prenatal testing can result in uninformed and unexpected decisions to terminate, due to medical professionals and general society often having “nothing good at all to say” about DS. Indeed, one study has found that almost a quarter of physicians actively urge abortion, or emphasize the negatives about DS in order to encourage it. Even for those committed to non-directive counseling, a majority of physicians and genetic counselors have said that they would abort following a prenatal diagnosis for DS, which no doubt affects how a diagnosis is presented. Other recent studies also have found that a significant percentage of adults, youths, and physicians still hold outdated views about DS and would prefer that children with DS were segregated from, rather than included in, the community and typical classrooms. Therefore, those who choose to abort often are seeking to avoid an inaccurate, uninformed, and overly negative view of a life with DS, which is not supported by the current research.

Caplan laments that this “climate for having kids with Down syndrome, happy though they may be, is not good.” But Caplan’s own words contribute to maintaining this lamentable climate.

Caplan writes as though aborting a fetus somehow avoids Down syndrome. An abortion will prevent a child from being born, but it will not prevent that child from having DS; DS occurs at conception. Caplan ends his column by stating that “an abortion for medical reasons is a highly personal decision.” Yet, there is not a medical reason for aborting because of a prenatal diagnosis for DS. DS does not pose a risk to the health of the mother or the child. (Caplan refers to heart and stomach defects that some children with DS have, but these can now almost always be treated surgically.)

Nevertheless, the climate of ignorance about, and prejudice against, DS does exist, which is why this new research needs to be shared with the medical community and with expectant parents. While Caplan calls for this, he is simply wrong to assume that sharing this information will not make a difference. The most influential information an expectant mother receives is from her physician and from written resources. Physicians should be well-informed about DS and provide accurate written materials to their patients. Ignorance and prejudice persist, however: over 80 percent of medical students are not trained in working with individuals with intellectual disabilities, and almost 60 percent of medical school deans do not believe they should be. Further, while most physicians now offer prenatal testing to all expectant mothers, less than a third provide them with educational materials.

This pervasive, self-imposed ignorance in the administration of prenatal testing for DS is contrary to ethical medical practice because it denies expectant parents the information they need to make informed decisions. The same studies that identified the pervasiveness of outdated views about DS also found that those who knew someone with DS were more accepting of DS, and that was true as well of physicians who knew someone with DS, as compared to those physicians who had not known any. Despite their rising birth rate, those with DS remain an incredibly small minority population. This is precisely why providing information about these new studies is so important, for most expectant parents and their physicians will not otherwise have or understand the positive experience of getting to know a person with DS.

The further significance of the new research is that it addresses the concerns of mothers who have aborted following a prenatal diagnosis. These mothers were concerned that the condition would be an excessive burden on them and their other children, and that DS may be too much of a burden for the child him- or herself. The three new studies directly counter these concerns and more, as they reveal a truth not often considered: a child with DS will almost always be a positive force in the lives of his or her parents and siblings. The studies found that 79 percent of parents felt that their outlook on life was more positive because of their child with DS. For siblings, the response was even greater, with 88 percent feeling that they were better people because of their siblings with DS.

The most recent practice guidelines call for sharing positive stories about DS, and the new research provides physicians with those positive stories. These stories do indeed matter. Kathryn Lynard Soper is the author of Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, which is an approved resource by the National Society of Genetic Counselors’ practice guidelines. The introduction to the book’s sequel, Gifts 2, presents compelling evidence of how sharing positive stories can and will make a difference. Soper writes of co-hosting a new parents’ workshop at the National Down Syndrome Congress convention. A woman holding a baby started the Q&A time with the following comment: “This is Grace. I just wanted you to know that if I hadn’t read your book, my daughter wouldn’t have been born.”

Contrary to Caplan’s opinion, DS is not something almost universally sought to be avoided. Moreover, sharing accurate information about DS, the newest of which is overwhelmingly positive, can and will change expectant parents’ views following a prenatal diagnosis. This is in the best interest not only of those who are conceived with Down syndrome, but also of those who are blessed to know them.


This article originally appeared on Public Discourse: Ethics, Law, and the Common Good, the online journal of the Witherspoon Institute of Princeton, NJ. It is reprinted here with permission. Mark W. Leach, Esq., is an attorney in Louisville, Kentucky, where he is pursuing a Master of Arts in Bioethics. He is the founder and chair of the Informed Decision Making Task Force for Down Syndrome Affiliates in Action and was a contributor to Gifts 2. The views expressed are entirely his own.

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David Bereit of 40 Days for Life, on the right.
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All one fight: Why the leader of 40 Days for Life says he may become active in the fight for marriage

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By Dustin Siggins

WASHINGTON, D.C., April 27, 2015 (LifeSiteNews.com) – Just eight years ago, 40 Days for Life was founded as a pro-life Christian ministry. This year, it reached 252 cities in 19 countries.

Now, says founder and National Director David Bereit, he's discerning whether to expand his personal activism to marriage.

"The various moral issues we confront in our culture today are all intrinsically connected," Bereit told LifeSiteNews at Saturday's March for Marriage. “When you look at the various factors that lead to the breakdown of nations and civilizations, they are moral factors," Bereit said. "It's the devaluing of human life, it's the abandonment of religious belief and practice, it's immorality -- the increase thereof – and it's the breakdown of the family."

"They're all tied into this moving away from God, and America was founded as a nation with Christian principles and ideals that used to say 'In God We Trust.' And the further we've turned away from that, the more we have fallen,” he said. "I believe that with man, turning the tide in our culture is not possible, but with God, all things are possible."

Bereit stressed that his attendance at the March for Marriage, as well as his ongoing process of discernment, was representative only of his own circumstances -- not those of 40 Days for Life, which remains an abortion-focused ministry.

Bereit did not shy away from questions that are often raised about what President Barack Obama called America's “tragic” history.

"America was built on Judeo-Christians principles,“ he said. “There are still fallen people that make up our churches and our communities."

"The question is, will people of faith and conscience turn back to God and do their very best to align themselves with the principles that formed our nation and made our nation such a great place in history?"

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The third annual March for Marriage, which was organized by the National Organization for Marriage and exclusively livestreamed by LifeSiteNews, drew thousands of people, mostly minorities, just three days before what is being billed as the definitive U.S. Supreme Court hearing on the issue of same-sex "marriage."  

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‘Persecution plain and simple’:  Franklin Graham fundraises for Oregon bakers after GoFundMe shuts them down

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By Ben Johnson

BOONE, NC, April 27, 2015 (LifeSiteNews.com) – First, they were fined $135,000 for refusing to bake a wedding cake for a homosexual “marriage” ceremony. Then, a rival business owner convinced GoFundMe.com to stop Christian bakers Aaron and Melissa Klein from raising money to pay the fine on the grounds that, since their religious beliefs violate state law, they are common criminals.

Now, one of the nation's most well-known Christian ministers and philanthropists is coming to their aid.

An administrative law judge fined the Oregon bakers, proprietors of Sweet Cakes by Melissa, $135,000 to pay for the emotional suffering of Rachel and Laurel Bowman-Cryer – a lesbian couple who say they feel the Kleins “mentally raped” them.

The Kleins have since closed their Portland-area business and lost substantial income. After hearing of the fine on Friday, Melissa said the amount would financially crush them.

The family opened a GoFundMe page and, within hours, they collected more than $109,000.

Then Lisa Watson, the co-owner of Cupcake Jones in Portland, began lobbying the website to banish the couple's appeal.

“The amount of money they have raised in a matter of a few hours by thousands of anonymous cowards is disgusting,” Watson wrote on Facebook. She added that the website's “terms of service address hate speech, bigotry, criminal activity, and sexism among other things in their campaign.”

GoFundMe then suspended the Kleins' fundraising.

“While a different campaign was recently permitted for a pizzeria in Indiana, no laws were violated and the campaign remained live,” GoFundMe said in a statement. “However, the subjects of the 'Support Sweet Cakes By Melissa' campaign have been formally charged by local authorities and found to be in violation of Oregon state law concerning discriminatory acts. Accordingly, the campaign has been disabled.”

The day after the announcement Watson, who operates her business with husband Peter Shanky, posted a photo of her 2015 Equality Advocate Award “for outstanding leadership to advanced lived equality for all LGBTQ Oregonians.”

The Kleins hope the website will reconsider. “We have told GoFundMe that the money is simply going to be used to help our family, and there is no legitimate breach of their terms and conditions,” the Kleins wrote on Facebook.

That's when the Reverend Franklin Graham and his ministry Samaritan's Purse stepped in, allowing those who wish to alleviate the couple's suffering to donate on its website.

"The fund was created to help persecuted Christians in the U.S., including Aaron and Melissa Klein,” an employee at Samaritan's Purse told LifeSiteNews today. “It was only activated over the weekend and the organization has not yet announced any numbers. Currently, Samaritan's Purse is focused on the earthquake in Nepal and providing relief supplies to people impacted by the disaster.”

Graham praised the Kleins' steadfastness in the face of legal challenges. “They have taken a stand for the Word of God, and they should not have to stand alone,” the ministry's founder and president Franklin Graham said. “I believe that Christians across our nation will rally around Aaron and Melissa and their five children. Please pray for Aaron and Melissa, and pray for our nation. When our judges are punishing Christians for practicing what they believe, that’s persecution, plain and simple.”

“God bless Reverend Franklin Graham,” AFR Talk radio host Bryan Fischer said today. 

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The Kleins will still receive the money raised by GoFundMe, in addition to any supplemental funds raised by Graham's international charitable ministry.

Conservative author Dan Calabrese wrote that “Melissa's Sweet Cakes will not have to go into bankruptcy and the family won't personally be ruined. And what a disappointment that must be to the gay mafia, whose agenda is to intimidate all gay marriage opponents into not just silence but compliance, for fear of just such” an outcome.

Christians have risen to the challenge before. Memories Pizza raised more than $840,000 after the Indiana pizzeria was harassed into closing its doors for saying it would cater a same-sex “wedding.”

Calabrese warns that these victories may lead to more intense anti-Christian persecution.

“When put in an untenable position like this, Christians and others who support their right to operate their business as they see fit will come to their aid. So the gay mafia will take it up a notch, attempting to intimidate the fundraising organizations from cooperating with the effort,” he said.

If that fails, “Maybe they can persuade friendly Democrat lawmakers (or terrified Republicans) to legislate them out of business.”

Readers can donate to the Klein family here.

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Opposition to same-sex ‘marriage’ – a deeper love

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By John-Henry Westen

April 27, 2015 (CNSNews.com) -- Same-sex “marriage” – the legal recognition of same-sex relationships – is one of the most contentious issues in America. Laws, constitutional interpretation, and the future of religious liberty may well rest on what nine justices decide two months from now.

Many observers seem to believe that the Supreme Court will rule in favor of redefining marriage. And while many on all sides of the debate, especially those who are undecided, believe this will bring cultural peace, evidence around the world points in the exact opposite direction.

Rather than settle animosity and ease cultural tensions, the advent of same-sex “marriage” will lead to the repression of religious freedom and determination to root out dissent to the gay rights doctrine. At LifeSiteNews, we have watched this play out for nearly two decades in 17 countries around the world – and America is next.

A prime example is Canada. Same-sex “marriage” passed in 2005. Similar to European countries which have done so, there has been a relentless pursuit of the minds of children against the wishes of their parents. Schools, both public and private, were first mandated by law to have gay-straight alliance clubs under the auspices of anti-bullying. Then, sex-education, teaching the normalcy of homosexual sex, was given to children without parents being permitted to opt their children out of the classes.

We have arrived at this state of affairs because of the silence of Christian pulpits on sexual matters, and the concomitant shouting from every secular pulpit, screen and book. Even the current discussion around same-sex “marriage” in the United States reveals a grave reluctance to speak about the heart of the issue – homosexual sex. Rather, arguments are made about the goodness of natural marriage, about its benefit to children, and its unchangeable character.

From reporting on the subject every day for so many years, we knew that the struggle for same-sex “marriage” has very little to do with marriage. In fact, until just recently, gay activists didn’t even want to be “married” to each other. Most had no interest in the constraints that such a formalized union would entail in terms of exclusive partnership.

However, the leaders among the activists convinced the movement that they must attain marriage as a societal stamp of approval to homosexual behavior. And, frankly, they have largely succeeded.

Today, in many of the nations where same-sex “marriage” is law, opposition to it is seen as akin to racism. It is seen falsely as an animosity against someone for who they are—an unwillingness to recognize the human dignity of a class of persons due to an immutable characteristic.

However, that false perception is due to a purposeful agenda to conflate animosity against homosexual sex acts with animosity against persons who experience same-sex attraction. The ancient Christian teaching to “love the sinner and hate the sin” is an impermissible distinction in the minds of some. It is, however, the key to understanding the majority of the opposition to same-sex “marriage.”

The plain truth of the matter is that opposition to same-sex “marriage” is rooted not in hatred and bigotry, but just the opposite – in love. Like parents who do not allow children to behave dangerously without lovingly correcting them, opponents of same-sex relationships are hoping to save people with same-sex attractions from severe physical, psychological, and spiritual harm.

Just as, out of love and concern for their children’s welfare, parents must correct and discipline, despite the protests they may get in return, any true believer in marriage, natural law and science must lovingly correct their fellow man.

In other nations, the perception that opposition to same-sex “marriage” is based upon bigotry has led to laws that violate religious liberty, parental rights and freedom of speech. This is why those who oppose same-sex “marriage” must present their reasoning as based on love and concern for the welfare of those in homosexual relationships, in addition to concerns for children and society itself. And there is ample evidence on which to base that concern in the numerous studies showing the grave harm of homosexual sex to both body and psyche.

When I’ve spoken of these findings at conferences around the world, some have questioned if the researchers who showed these harms weren’t themselves biased by anti-gay sentiment. And so I’ve taken to carrying with me on my phone the quotes of the late Canadian gay activist Gens Hellquist, whose testimony proves the harms of gay sex better than any study ever could.

Speaking a year after the passage of same-sex “marriage” into law, Hellquist was seeking more healthcare dollars for the LGBT community. "We have one of the poorest health statuses in this country,” he said. “Health issues affecting queer Canadians include lower life expectancy than the average Canadian, suicide, higher rates of substance abuse, depression, inadequate access to care and HIV/AIDS."

"There are all kinds of health issues that are endemic to our community,” he added. “We have higher rates of anal cancer in the gay male community, lesbians have higher rates of breast cancer.”

He concluded: “Now that we can get married everyone assumes that we don't have any issues any more. A lot of the deaths that occur in our community are hidden, we don't see them. Those of us who are working on the front lines see them and I'm tired of watching my community die."

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Pastors and preachers must take up this call to speak the truth in love, for without this approach, the public will be led to believe that those opposed to same-sex “marriage” are indeed haters needing to be stopped with the force of law. Love is the most powerful force in any argument, and gay “marriage” pushers have used it very effectively. As Hilary Clinton tweeted as she fought religious freedom laws in Indiana: “We shouldn't discriminate against ppl bc of who they love #LGBT”

The truth is that those who oppose same-sex “marriage” are showing a deeper love, as any parent does when instilling difficult discipline. We have enough love and concern for those with same-sex attraction to warn them not to engage in behaviors proven to be very harmful. We won’t encourage people to enter into such harmful behaviors by redefining marriage to encourage it, nor will we allow our children to be indoctrinated into regarding it as a healthy and safe alternative lifestyle.

We have failed so far to get this message of love out to the public. I will not be surprised if the Supreme Court approves of same-sex “marriage” – and I will be even less surprised to see a subsequent  crackdown on religious freedom, as already seen in states like California and Colorado.

Pope Benedict XVI predicted it a decade ago. Observing the international trends, the then-Cardinal said “very soon it will not be possible to state that homosexuality, as the Catholic Church teaches, is an objective disorder in the structuring of human existence.”

Reprinted with permission from CNS News

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