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Baby Isaiah’s Case Part of a National Trend Say Advocates for the Disabled

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By Patrick B. Craine

EDMONTON, Alberta, January 20, 2010 (LifeSiteNews.com) – While Isaac and Rebecka May, the Canadian couple who are fighting for their new-born baby’s life, are awaiting a January 27th judgment on their petition for a 90-day injunction against their hospital's order to remove their baby Isaiah's ventilator, some advocates for the disabled are saying that what the May’s are experiencing is shockingly common in Canada.

According to Sam Sansalone, father of Katya Sansalone, who was born 8 years ago with full trisomy 13, in Canada “profoundly disabled kids are routinely – and intentionally – not treated with life-saving intervention.”  Sansalone serves as co-chair of the Advisory Committee of Family to Family Connections at the Alberta Children’s Hospital, a family-centered care initiative recently launched in Southern Alberta. 

He said that “the dynamic that we had to fight became very quickly and firmly entrenched as soon as we had a genetic diagnosis.”“The clear mandate, at least at that time, was that you don't save these disabled children's lives,” he continued.  “You allow them to die – even though the needed interventions are exactly the same as would routinely and unquestionably be given to quote-unquote normal children.”

Katya Sansalone was born with a cardiac condition that is associated with her chromosomal defect.  The Sansalones fought hard with their hospital, the Hospital for Sick Children in Toronto, to have them perform the cardiac surgery that Katya needed.

The hospital initially refused to do the surgery, he said, but “they didn't make it look that way.”“Initially they said we had a choice, and then they proceeded with trying to influence that choice by giving us false information about the range of outcomes,” he continued.

Sansalone attributed their success in part to the fact that his wife is a doctor, which helped the family to research Katya's condition. This research allowed them to be “not so easily fooled by this kind of misinformation.”

Sansalone said the hospital “actually tried to hide medical literature from me.”  He saw that on one occasion the neonatologist had a key study on a clipboard that actually dispelled myths about Katya's condition that the hospital had perpetuated, but the doctor held the study out as though it supported their position.  “When I tried to read it, the neonatologist doctor actually pulled it away from my view,” he said.

Sansalone believes their experience might have some parallels to what the Mays are now going through with the Stollery Children's Hospital.  “I hear that they were being denied ... regular access to the patient chart – reading it and seeing the imaging.”

“That is completely illegal, and it is entirely in the parents' right to have as much access as they need to become informed,” he said. “When you have that parental scrutiny of the chart, [the hospital staff's] behaviour, because it will be more scrutinized, will be in better form. ... Terrible things are done behind parents' backs.”

Sansalone pointed out the case of baby Annie Farlow, who also had trisomy 13, but died five years ago at the Hospital for Sick Children in Toronto.

In an September-October 2009 article for the prestigious Hastings Center Report, Annie's mother Barbara told the story of how she and her husband were misinformed and deceived by doctors who she says were not interested in giving Annie the care she needed to survive.

Annie was born especially healthy for her condition, but on her 80th day she suffered a respiratory crash.  Based on the advice of their pediatrician and hospital staff, the Farlows agreed to not have Annie intubated, and she died shortly thereafter.

Barbara writes about how she was suspicious about certain irregularities in the events leading up to Annie's death.  “Although I felt guilty, ashamed, and ungrateful to be so suspicious, I ordered Annie’s medical records to look at the events of her last hours,” she says.

“I was shocked by what we found.”

The intensive care specialist, she discovered, had ordered that Annie not be resuscitated hours before they had consented.  Further, they had not been informed that even from the fifth day of her life, there were signs that Annie's condition was deteriorating.  Additionally, a pulmonologist had ordered tests for a dangerous condition, which were cancelled.

“To this day, it is unclear to us whether our daughter’s death was preventable or inevitable,” she wrote.  “In either case, Annie had suffered terribly and unnecessarily as she slowly asphyxiated to death. The lack of transparency in the treatment plan ensured that she received neither appropriate lifesaving care nor effective palliation.”

CTV Edmonton reported yesterday on another similar case to Baby Isaiah's, in which the parents were only successful in saving their baby after a fight with medical staff.

Turner Kersey was born three years ago, 14 weeks prematurely, with severe brain damage due to a lack of oxygen during birth.  Doctors told his family that he would be vegetative for the rest of his life, and pressured them to take him off life support.

"It was a large fight on our part in order to have our voices heard," said Brandy Kersey, Turner's mother.  They said "that we should take him off life support ... that we should let life take its course.”

The Kerseys were successful in obtaining the necessary surgery for Turner, and now, says Brandy, "He's doing everything they said he wouldn't. He walks, he talks, he dances, he sings, he counts to 20."

Dr. Paul Byrne, a neonatologist with nearly fifty years of experience, who has been advising Isaac and Rebecka, told LifeSiteNews yesterday how Stollery Children's Hospital has refused to give baby Isaiah appropriate and standard care.

Besides putting Isaiah on a ventilator, he said the doctors have not conducted blood tests or blood counts, and that the hospital has refused to do a tracheotomy, which would be standard in Isaiah's case, despite Isaac and Rebecka's pleading.

“I have a hard time believing how all of this is going on, but on the other hand, I don't have [a] hard time ... in the sense that these things are going on much more commonly than anybody ever realizes,” he said.

Mark Pickup, an advocate for disability issues who has been involved in the Mays' case, urged the hospital to respect the parents' desire to preserve Isaiah's life.

“We must always make decisions that default toward life,” he said.  “The parents are not in favour of the hospital's actions here, and I would urge the hospital to not make that decision to remove the respirator.  Allow other physicians to take a look at this case.  There may be a way out that's life-affirming, not life-denying.”


See the Facebook group in support of Baby Isaiah: Prayers for Baby Isaiah James here.

See the Facebook group seeking justice for Annie Farlow: Justice for Annie here.

Contact Information:

Stollery Children's Hospital
8440 112 Street Northwest
Edmonton, AB T6G 2B7
General Phone Line: (780) 407-8822

Alberta Health Services - Complaints
Mail Slot 57
11111 Jasper Avenue
Edmonton, Alberta T5K 0L4
Toll-free: 1-877-753-2170
Telephone: 780-342-8080
Fax: 1-877-871-4340

Dr. Ernest Z. Phillipos, Director of Neonatal Intensive Care Unit
Stollery Children's Hospital
Phone: 780-407-1305
Fax: 780-407-3030
E-mail: [email protected]

Gene Zwozdesky, Alberta Minister of Health
208 Legislature Building
10800 - 97 Avenue
Edmonton, AB T5K 2B6
Phone: 780 427-3665
Fax: 780 415-0961
E-mail: [email protected]

Office of Premier Ed Stelmach
Room 307, Legislature Building
10800 - 97th Avenue
Edmonton, Alberta
T5K 2B6
Phone: (780) 427 2251
Fax: (780) 427 1349
E-mail: [email protected]


See related LifeSiteNews.com coverage:

Young Canadian Parents Fighting Hospital to Save Their Baby's Life
http://www.lifesitenews.com/ldn/2010/jan/10011910.html

Annie's Story: The Tragic Death of a Girl with Trisomy 13 - PART 1
http://www.lifesitenews.com/ldn/2008/jun/08061911.html

Parents Lose Malpractice Suit Against Toronto Sick Children's Hospital Over Baby Daughter's Death
http://www.lifesitenews.com/ldn/2009/nov/09113009.html

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TLC pulls ‘19 Kids and Counting’ from schedule following Duggar molestation allegations

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By Ben Johnson

SPRINGDALE, AR, May 22, 2015 (LifeSiteNews.com) – The television network TLC has removed the Duggar family's reality show, “19 Kids and Counting,” from its schedule, at least temporarily.

Multiple news outlets have confirmed that the show, featuring the large and expanding evangelical Christian family, will not be on the air until the network makes a final decision about the program's fate.

The network had previously removed “Here Comes Honey Boo Boo” from its network after “Mama June” Shannon had been seen associating with convicted child molester Mark McDaniel, possibly exposing her children to a sexual predator. Shannon has told the entertainment news outlet TMZ that she would sue the network for unfair and inconsistent treatment.

TLC has not made a final determination as of yet and aired a Duggar marathon Thursday evening as the controversy brewed.

Friday's move comes after media outlets obtained police records showing Josh Duggar, as a young teenager 12 years ago, inappropriately touched as many as five girls, often while they were sleeping. The police records show the incidents began in March 2002, the month the oldest Duggar child turned 14. He admitted the incident to his parents that July, but another incident took place in March 2003. At that time, the family sent him to a program that required counseling and hard physical labor.

Three years later, a letter containing details of the molestation was found, and its recipient notified police, who launched an investigation.

One of his victims told police, after Josh returned in July 2003, he had clearly “turned back to God.” No further incidents have been alleged.

Duggar's wife of six-and-a-half years, Anna, said Josh revealed the painful episode to her two years before they got engaged.

Since the allegations have been made public, Josh Duggar admitted his long ago wrongdoing, calling his teenage actions “inexcusable.” He also resigned his job at FRC Action, a pro-family lobbying organization.

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Some figures have offered the Duggars their reassurance that, whatever sins Josh committed as a teen, he can be – perhaps has been – forgiven by God.

Former Arkansas Gov. Mike Huckabee, now a presidential hopeful, said that Josh “and his family dealt with it and were honest and open about it with the victims and the authorities. No purpose whatsoever is served by those who are now trying to discredit Josh or his family by sensationalizing the story.”

He said those who leaked the story were motivated by “insensitive bloodlust” to destroy the Duggar family. “There was no consideration of the fact that the victims wanted this to be left in the past, and ultimately a judge had the information on file destroyed—not to protect Josh, but the innocent victims.”

God, Huckabee said, forgives all sins.

“In my life today, I am so very thankful for God’s grace, mercy and redemption,” Josh wrote.

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Rebecca Kiessling of Save the 1 - United States Steve Jalsevac/Vatican City
Rebecca Kiessling

I told her I was conceived in rape. She told me to prove I shouldn’t have been aborted.

Rebecca Kiessling
By Rebecca Kiessling

(Savethe1) - Why should I have to prove my worth and my right to life? When I first learned at the age of 18 that I was conceived in rape, I instantly felt targeted and devalued by our society because I’d heard what people said about pregnancy “in cases of rape.” Right away, I felt I was in a position where I would have to justify my own existence – that I would have to prove to the world that I shouldn’t have been aborted and that I was worthy of living.

I’ve since found my own value, identity and purpose in Christ, being created by God, in His image, and for a purpose, so I no longer feel I need to prove my worth to others in order to feel worthy. Instead, I share my worth out of gratitude for my own life being spared and in order that others may see the value of those who are still at risk – those who are in harm’s way as yet unborn and being targeted for abortion in the clinics, in legislation, and in people’s hearts and minds.

Whenever I speak, I share this aspect of my journey, but people are shocked to hear that I actually do get challenged to prove my value, to demonstrate my positive contribution to society and to justify my right not to have been aborted. This recent e-mail is a case in point. It was a tough inquiry to receive, but you’ll see my hopefully patient (and prayerful) responses below, and the ultimate outcome of the exchange:

I’m feeling sad and skeptical about rape babies.  I’d love to consider myself pro-life due to biblical reasons, but I just don’t really see what good can ever come out of a rape baby. I still think that it sometimes furthers the victimization of a rape victim. And it’s also because I’m very sad and disturbed by your blog.

I just think sometimes that it would be better if these babies never existed -- that every single one would naturally be miscarried by God’s will, so no one could bully them for their skeleton in their closet. Like I said, the subject manner disturbs me to the point where I vomit. I wish that every child was conceived in love and not violence because that's the way it should be. And I'm sad to say that the only way I could fully believe all of you rape mothers and children is if you were to pray for the peace of God that transcends all my futile understanding and my volatile, overly-sensitive emotions. 

There is no story in the whole world that can fully change my mind. The only way I could ever is if I were to befriend a victim or become the Bride of a man whom was the product of abuse. I'm so sorry to be brutally honest; it's just that my heart grieves to the point where I feel the struggle to overcome the sin of prejudice. I'm so angry at God that he allows this to occur.

Dear __, I appreciate you going to our blog and taking the time to reach out to us.  Your concerns are the most common, but research shows that rape victims are four times more likely to die within the next year after the abortion vs. giving birth. Dr. David Reardon's book Victims and Victors: Speaking Out About Their Pregnancies, Abortions and Children Resulting From Sexual Assault explains this.  So it's a myth which gets perpetuated -- that a rape victim would be better off after an abortion, that her child would be a reminder of the rape, and that she would even see her child as a "rape baby," as you put it.

I understand a lot of what you're saying.  You would definitely feel differently if you knew someone personally.  I wished I wasn’t conceived in rape, but I do believe now that God definitely brings good out of evil, and uses tragic situations to bring healing.  He doesn't intend the evil of course, but his trademark is redeeming really awful situations.

-- Rebecca

Her reply (again, challenging for me to read, but I think she candidly articulates a lot of what most people really wonder or think):

What has God done in your life personally besides this blog that has made your tragic family life worth the pain? Tell me what you have been doing: like marriage, dating, children, jobs, friendship, volunteer work; any of that. I am curious to see how God has given your life joy and purpose. I'm sorry if I have ever been difficult to handle. I'm emotionally impulsive when I hear something sad.

First of all, my birthmother and her husband legally adopted me 3-1/2 years ago because my adoptive family was really screwed up (long story of abuse and abandonment.) My own adoption by my birthmother was our fairy-tale ending.  She says I'm a blessing to her, I honor her and I bring her healing! I love adoption -- my two oldest are adopted (very open adoption,) and we adopted a baby with special needs -- Cassie -- who died in our arms at 33 days old. It was an honor to take care of her and was definitely one of the most important things I'd ever done in my life. She died because of medical malpractice.

Married for nearly 17 years, we have 5 children now – two adopted sons and our three biological daughters.  Here's my son's story. He wrote it last September at 12 years old.

Besides being the president and founder of Save The 1, I also co-founded Hope After Rape Conception. I'm a family law attorney, though I closed my law practice to have my children and to home school until 2-1/2 years ago.

I make baby quilts which I donate to pregnancy resource centers and I give to moms in unplanned pregnancies. My birthmother taught me to sew! I also taught my children to quilt, as well as many of my friends and their children. I've volunteered with orphan care, Sunday school, feeding the disadvantaged, free legal work, volunteer work for a maternity home, and helping in various ways with pregnancy resource centers. I changed the hearts of Gov. Rick Perry and Newt Gingrich on this issue during their presidential campaigns!

A large part of what I do is helping others to understand their value, identity and worth because lots of people struggle with these issues -- not just those conceived in rape. I hope this helps!  -- Rebecca

Her final response – from someone who said “there is no story in the world that can fully change my mind”: 

Dear Rebecca, thank you so much for your time to straighten out my emotional acting out -- I'm really glad you told me about your life. I really think I'll be okay now. I still wish that men wouldn't rape, but at least the world knows a lot more than they used to and I can say that I'm pro-life to my college professors without paranoia or anxiety. I even talked about helping people like you with my mom and dad. They told me I'm too sensitive in personality to be involved directly in domestic politics; yet, I'm praying about being a free English tutor for troubled families as well as being an anti-pornography informant or activist. After all, the porn industry has been statistically linked to the sexual violence pandemic. I'm so glad that you are living life well and to the best of your ability; keep telling people that just because your birth father was an evil scumbag doesn't mean that you are. Thanks Rebecca, you have really touched and strengthened my heart. With much sincerity.

 

BIO: Rebecca Kiessling was conceived in rape and nearly aborted, but legally protected by law in Michigan pre-Roe v Wade.  She's an attorney, pro-life speaker and blogger, and President of Save The 1. Her own website is www.rebeccakiessling.com

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Boy Scouts president: We need to allow open homosexual leaders

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By Dustin Siggins

May 22, 2015 (LifeSiteNews.com) – Boy Scouts of America president Robert Gates says the youth organization must change with the times and allow open homosexual men to serve as Scout leaders.

Gates, the former U.S. Secretary of Defense and CIA Director, said in a speech at the 2015 Boy Scouts of America (BSA) National Annual Meeting Thursday that the Boy Scouts would have to adjust to "the social, political, and juridicial changes taking place in our country -- changes taking place a pace this past year no one anticipated."

According to Gates, the way to balance the religious affiliations of "some 70% of our scout units" and avoid "a broad [court] ruling that could forbid any kind of membership standard" is to offer individual troops a flexible membership policy. 

"For me, I support a policy that accepts and respects our different perspectives and beliefs, allows religious organizations -- based on First Amendment protections of religious freedom -- to establish their own standards for adult leaders, and preserves the Boy Scouts of America now and forever."

"I truly fear that any other alternative will be the end of us as a national movement," said Gates, who said that BSA should "seize control of our own future, set our own course, and change our policy in order to allow charter partners -- unit sponsoring organizations -- to determine the standards for their Scout leaders."

This is not the first time that Gates, who led the military to end its two decades-long Don't Ask, Don't Tell policy, has supported gay Scout leaders. Last year, he said that he "would have supported having gay Scoutmasters, but at the same time, I fully accept the decision that was democratically arrived at by 1,500 volunteers from across the entire country."

In 2013, BSA allowed openly homosexual scouts for the first time. That policy reads: "No youth may be denied membership in the Boy Scouts of America on the basis of sexual orientation or preference alone,” and took effect on January 1, 2014.

A year ago, Gates said he "was prepared to go further than the decision that was made" to allow gay Scout members, but decided that "to try to take last year's decision to the next step would irreparably fracture and perhaps even provoke a formal, permanent split in this movement - with the high likelihood neither side would subsequently survive on its own."

This week, though, Gates said that "events during the past year have confronted us with urgent challenges I did not foresee and which we cannot ignore."

"We cannot ignore growing internal challenges to our current membership policy, from some councils... in open defiance of the policy," said Gates. 

However, Gates' remarks may have come too late to prevent internal challenges from splitting BSA. Due to the 2013 vote, a number of Scouting alternatives launched, including the organization Trail Life USA. The latter group says it aims "to be the premier national character development organization for young men which produces Godly and responsible husbands, fathers, and citizens." 

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In January, Trail Life USA said it has "over 540 Troops in 48 states and the registration of nearly 20,000 adults and boys..."

Furthermore, the decision by BSA to allow gay scouts has led to criticism from people on both sides of the debate. Homosexual activists say the group did not go far enough, whereas many Christian parents and organizations say BSA is bowing to public pressure from homosexual advocates to affect its membership, despite its Christian roots.

Corporate pressure has also been aggressive. Last year, Walt Disney World threatened to not allow employees to volunteer for BSA as part of its VoluntEARS program in 2015 if the organization does not allow gay Scout leaders. Diversity Inc. reports that Merck & Co., Ernst & Young, Major League Baseball, and AT&T are just some of the other companies that have pressured BSA to further change its policies.

LifeSiteNews asked BSA whether Gates' comments indicated support for a totally flexible scout leadership policy, or just related to gay scout leaders, as well as whether BSA would take a stand against state and local laws that deny First Amendment rights to people who oppose same-sex "marriage."

BSA declined to comment, telling LifeSiteNews in a statement: "Dr. Gates’s remarks speak for themselves. ... It is important to note that no decisions were made during the National Annual Meeting. A decision is expected no later than the Boy Scouts of America’s National Executive Board meeting in October."

A video of Gates' remarks is below. The comments about membership standards begin at 8:40.

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