LifeSiteNews.com

Baby Isaiah’s Case Part of a National Trend Say Advocates for the Disabled

LifeSiteNews.com
LifeSiteNews.com

By Patrick B. Craine

EDMONTON, Alberta, January 20, 2010 (LifeSiteNews.com) – While Isaac and Rebecka May, the Canadian couple who are fighting for their new-born baby’s life, are awaiting a January 27th judgment on their petition for a 90-day injunction against their hospital's order to remove their baby Isaiah's ventilator, some advocates for the disabled are saying that what the May’s are experiencing is shockingly common in Canada.

According to Sam Sansalone, father of Katya Sansalone, who was born 8 years ago with full trisomy 13, in Canada “profoundly disabled kids are routinely – and intentionally – not treated with life-saving intervention.”  Sansalone serves as co-chair of the Advisory Committee of Family to Family Connections at the Alberta Children’s Hospital, a family-centered care initiative recently launched in Southern Alberta. 

He said that “the dynamic that we had to fight became very quickly and firmly entrenched as soon as we had a genetic diagnosis.”“The clear mandate, at least at that time, was that you don't save these disabled children's lives,” he continued.  “You allow them to die – even though the needed interventions are exactly the same as would routinely and unquestionably be given to quote-unquote normal children.”

Katya Sansalone was born with a cardiac condition that is associated with her chromosomal defect.  The Sansalones fought hard with their hospital, the Hospital for Sick Children in Toronto, to have them perform the cardiac surgery that Katya needed.

The hospital initially refused to do the surgery, he said, but “they didn't make it look that way.”“Initially they said we had a choice, and then they proceeded with trying to influence that choice by giving us false information about the range of outcomes,” he continued.

Sansalone attributed their success in part to the fact that his wife is a doctor, which helped the family to research Katya's condition. This research allowed them to be “not so easily fooled by this kind of misinformation.”

Sansalone said the hospital “actually tried to hide medical literature from me.”  He saw that on one occasion the neonatologist had a key study on a clipboard that actually dispelled myths about Katya's condition that the hospital had perpetuated, but the doctor held the study out as though it supported their position.  “When I tried to read it, the neonatologist doctor actually pulled it away from my view,” he said.

Sansalone believes their experience might have some parallels to what the Mays are now going through with the Stollery Children's Hospital.  “I hear that they were being denied ... regular access to the patient chart – reading it and seeing the imaging.”

“That is completely illegal, and it is entirely in the parents' right to have as much access as they need to become informed,” he said. “When you have that parental scrutiny of the chart, [the hospital staff's] behaviour, because it will be more scrutinized, will be in better form. ... Terrible things are done behind parents' backs.”

Sansalone pointed out the case of baby Annie Farlow, who also had trisomy 13, but died five years ago at the Hospital for Sick Children in Toronto.

In an September-October 2009 article for the prestigious Hastings Center Report, Annie's mother Barbara told the story of how she and her husband were misinformed and deceived by doctors who she says were not interested in giving Annie the care she needed to survive.

Annie was born especially healthy for her condition, but on her 80th day she suffered a respiratory crash.  Based on the advice of their pediatrician and hospital staff, the Farlows agreed to not have Annie intubated, and she died shortly thereafter.

Barbara writes about how she was suspicious about certain irregularities in the events leading up to Annie's death.  “Although I felt guilty, ashamed, and ungrateful to be so suspicious, I ordered Annie’s medical records to look at the events of her last hours,” she says.

“I was shocked by what we found.”

The intensive care specialist, she discovered, had ordered that Annie not be resuscitated hours before they had consented.  Further, they had not been informed that even from the fifth day of her life, there were signs that Annie's condition was deteriorating.  Additionally, a pulmonologist had ordered tests for a dangerous condition, which were cancelled.

“To this day, it is unclear to us whether our daughter’s death was preventable or inevitable,” she wrote.  “In either case, Annie had suffered terribly and unnecessarily as she slowly asphyxiated to death. The lack of transparency in the treatment plan ensured that she received neither appropriate lifesaving care nor effective palliation.”

CTV Edmonton reported yesterday on another similar case to Baby Isaiah's, in which the parents were only successful in saving their baby after a fight with medical staff.

Turner Kersey was born three years ago, 14 weeks prematurely, with severe brain damage due to a lack of oxygen during birth.  Doctors told his family that he would be vegetative for the rest of his life, and pressured them to take him off life support.

"It was a large fight on our part in order to have our voices heard," said Brandy Kersey, Turner's mother.  They said "that we should take him off life support ... that we should let life take its course.”

The Kerseys were successful in obtaining the necessary surgery for Turner, and now, says Brandy, "He's doing everything they said he wouldn't. He walks, he talks, he dances, he sings, he counts to 20."

Dr. Paul Byrne, a neonatologist with nearly fifty years of experience, who has been advising Isaac and Rebecka, told LifeSiteNews yesterday how Stollery Children's Hospital has refused to give baby Isaiah appropriate and standard care.

Besides putting Isaiah on a ventilator, he said the doctors have not conducted blood tests or blood counts, and that the hospital has refused to do a tracheotomy, which would be standard in Isaiah's case, despite Isaac and Rebecka's pleading.

“I have a hard time believing how all of this is going on, but on the other hand, I don't have [a] hard time ... in the sense that these things are going on much more commonly than anybody ever realizes,” he said.

Mark Pickup, an advocate for disability issues who has been involved in the Mays' case, urged the hospital to respect the parents' desire to preserve Isaiah's life.

“We must always make decisions that default toward life,” he said.  “The parents are not in favour of the hospital's actions here, and I would urge the hospital to not make that decision to remove the respirator.  Allow other physicians to take a look at this case.  There may be a way out that's life-affirming, not life-denying.”


See the Facebook group in support of Baby Isaiah: Prayers for Baby Isaiah James here.

See the Facebook group seeking justice for Annie Farlow: Justice for Annie here.

Contact Information:

Stollery Children's Hospital
8440 112 Street Northwest
Edmonton, AB T6G 2B7
General Phone Line: (780) 407-8822

Alberta Health Services - Complaints
Mail Slot 57
11111 Jasper Avenue
Edmonton, Alberta T5K 0L4
Toll-free: 1-877-753-2170
Telephone: 780-342-8080
Fax: 1-877-871-4340

Dr. Ernest Z. Phillipos, Director of Neonatal Intensive Care Unit
Stollery Children's Hospital
Phone: 780-407-1305
Fax: 780-407-3030
E-mail: [email protected]

Gene Zwozdesky, Alberta Minister of Health
208 Legislature Building
10800 - 97 Avenue
Edmonton, AB T5K 2B6
Phone: 780 427-3665
Fax: 780 415-0961
E-mail: [email protected]

Office of Premier Ed Stelmach
Room 307, Legislature Building
10800 - 97th Avenue
Edmonton, Alberta
T5K 2B6
Phone: (780) 427 2251
Fax: (780) 427 1349
E-mail: [email protected]


See related LifeSiteNews.com coverage:

Young Canadian Parents Fighting Hospital to Save Their Baby's Life
http://www.lifesitenews.com/ldn/2010/jan/10011910.html

Annie's Story: The Tragic Death of a Girl with Trisomy 13 - PART 1
http://www.lifesitenews.com/ldn/2008/jun/08061911.html

Parents Lose Malpractice Suit Against Toronto Sick Children's Hospital Over Baby Daughter's Death
http://www.lifesitenews.com/ldn/2009/nov/09113009.html

Help us expose Planned Parenthood

$5 helps us reach 1,000 more people with the truth!


Share this article

Advertisement
Featured Image
Dr. Miriam Grossman speaks to large audience in Mississauga, Ontario Steve Jalsevac/LifeSite
Lianne Laurence

VIDEO: How DO you to talk to kids about sex? US sex-ed critic gives practical tips

Lianne Laurence
By Lianne Laurence

MISSISSAUGA, ON, August 27, 2015 (LifeSiteNews) – Talking to their children about sex is “anxiety provoking to say the least,” for parents, says American sex-ed expert, Dr. Miriam Grossman.

“Some people just can’t even do it, and that’s okay,” the New York-based psychiatrist told the crowd of 1,000 who packed a Mississauga conference hall August 18 to hear her critique of the Ontario Liberal government’s controversial sex-ed curriculum.

After Grossman explained how the Liberal sex-ed curriculum is dangerously flawed and ideologically driven, she used the question-and-answer session to give parents much appreciated and sometimes humorous practical advice on how to teach their children about “the birds and the bees.”

“If you feel you can’t do it, maybe there’s someone else in the family or in the constellation of people that you know you can trust that could do it,” said Grossman, author of “You’re teaching my child WHAT?” and an internationally sought-after speaker on sex education.

A child, adolescent and adult psychiatrist with 12 years’ clinical experience treating students at the University of California, Los Angeles (UCLA) clinic, Grossman said explaining sexuality and procreation to children is “a process,” that “shouldn’t ideally happen all at once. A child is not a miniature adult, and absorbs…new information differently than adults do.”

And parents need to be sure just what their child wants to know.

To illustrate this, Grossman referred to her earlier story about a father who gave his son every detail on human procreation after the boy asked him, “Dad, where do I come from?”

After the father finished, his son replied, “Well, that’s funny, because Johnny told me that he came from Montreal.”

“Try to find out what your child is really getting at, and, don’t give it all at once,” Grossman said. “You start with a little bit at a time…and you know, there’s so many variables here, and people have their own traditions and their own ways of explaining things, and something that might be right for my family might not be right for your family.”

She also advised that, when confronted with a four, five, six or seven-year-old asking about a pregnant woman, or where babies come, a parent can ask, “What a good question that is. What do you think?”

And parents can also legitimately put off the discussion when appropriate, telling the child, “That’s really not something you need to know about right now.”

“Wow, what a novel idea: Telling a child that they could wait until they’re older to discuss that subject,” Grossman said, adding that parents wouldn’t brook a six- or even fifteen-year-old child asking how much money they made or had in the bank. “Excuse me? Not every subject has to be an open book.”

However, the time will come when a child needs to know “about how her body’s going to change, about reproduction, about how a new life is created.”

That time, Grossman advised, is puberty, or “as puberty is beginning,” and this is especially so for girls, who, if unprepared for the surprise onset of menstruation “might think [they’re] dying.”

“The actual nitty-gritty about the birds and the bees and intercourse” can “be told in bits and pieces, or it can be told all at once, if you feel it’s necessary,” she said, adding that it’s beneficial if the parent acknowledges his or her awkwardness, because the child will think: “This must be such an important subject that my mother or my father is sitting there squirming, but he’s doing it anyway. I’m really loved.”

“And the children need to understand that as you grow up, you change a lot, not only physically but emotionally,” Grossman said, “and what may seem odd or disgusting when you’re ten years old, or whatever age, it becomes something very special and beautiful when you’re older and you’ll understand it later. You don’t have to understand it now.”


Know your child and guard your home

But as an essential foundation for this discussion, parents must both know their children and guard their home from the encroachments of a culture that Grossman described as “very, very sexualized” and “really horrible.”

“Children need parents who are loving but are also firm and authoritative,” she asserted.  “They don’t need best friends. They need us to guide them, to know what they’re doing, to be on top of what they’re doing.

So parents need to be aware of whom their child is “hanging around with, and what kind of movies are they watching…what’s going on with your child.”

“You need to know that anyway, even if it’s not about sex education,” she pointed out. “Try and know your child. Every child is different.”

And Grossman emphasized that it is “extremely important to be careful about what your child is exposed to in the home, in terms of television and Internet, obviously.”

Children need to understand that “just like you have garbage you take out of the house, you put it in the garbage bin, it’s dirty, it smells…there are other things that also don’t belong in the house.”

And children learn quickly what is, and is not, permissible inside the home, Grossman said. “Me, I keep kosher…If I go into a store, my kids know from a very young age, we don’t eat that.”

So they are used to the idea of “the world outside and the inside world, of inside your home, and inside your heart as well.”

Parents can also convey this by telling their children that “the world is an upside-down place, and sometimes the most special, holy subjects are…just thrown in the gutter. And that’s a bad thing. In our family, in our tradition, we don’t do that.”

“Sexuality is one of the subjects that in this upside-down world, it is sometimes just in the gutter,” she said. “And so I want you to tell your child to come to me when you have questions, I will give you the straight story about it.”

Grossman herself is “not even sure,” as she stated in her seminar, that sex education should be in the schools: “I believe sex education should be at home for those parents that want to do it.”

She also noted that parents “can make mistakes. We all make lots of mistakes but it’s okay, you can always come back and do it differently,” adding that this is “another wonderful message for your child. You know what, it’s okay to make mistakes, you can always go back and try and fix it.”

Grossman urged parents to visit her Facebook page, website and blog. “I have so much information you can get there that you’ll find useful,” and added that she will be publishing books for children, and has posted her critique of New York City’s sex-ed curriculum, which is similar to Ontario’s.

The parental backlash to that sex-ed curriculum, set to roll out in the province’s publicly funded schools this September, has been “amazing” Grossman noted.

Grossman’s seminar was sponsored by Mississauga-based HOWA Voice of Change along with the Canadian Families Alliance, an umbrella group representing more than 25 associations and 200,000 Ontarians opposed to the curriculum. The report on her devastating critique of the sex-ed curriculum can be found here, and the video here.

Ontario readers may find information and sign up for a September 2 province-wide protests at MPPs offices here. So far, there are protests planned for 92 of Ontario’s 107 constituencies. The parents’ movement seeking removal of the curriculum is urging all concerned citizens to join this special effort to influence individual Ontario legislators.

See related reports:

Ontario’s dangerous sex-ed is indoctrination not science says U.S. psychiatrist to large audience

Videos: US psychiatrist tells parents “stand firm” against dangerous sex-ed

See the LifeSiteNews feature page on the Ontario sex-ed curriculum containing nearly 100 LifeSite articles related to the issue

Share this article

Advertisement
Featured Image
Giulio Napolitano / Shutterstock.com
Pete Baklinski Pete Baklinski Follow Pete

,

Did the pope just endorse a gay children’s book? Of course not, says Vatican

Pete Baklinski Pete Baklinski Follow Pete
By Pete Baklinski

ROME, August 28, 2015 (LifeSiteNews) -- While mainstream media is gushing with news today that Pope Francis allegedly praised a children’s book that promotes gender theory, the Vatican is decrying what they called the "manipulation" of a cordial letter from an official in the Secretariat of State to suggest that the Vatican is promoting teachings contrary to the Gospel.

Italian children’s author Francesca Pardi was reported by The Guardian to have submitted a parcel of children’s books promoting the acceptance of homosexuality and gender theory to Pope Francis in June after Venice’s mayor Luigi Brugnaro publicly banned the author’s newest book, Piccolo Uovo (Little Egg), from children’s schools. The book was criticized by pro-family leaders for promoting non-natural family structures of two men and two women.

In a letter accompanying the books, Pardi wrote: “Many parishes across the country are in this period sullying our name and telling falsehoods about our work which deeply offends us. We have respect for Catholics. ... A lot of Catholics give back the same respect, why can’t we have the whole hierarchy of the church behind us?”

The Guardian is reporting that Pardi has now “found an unlikely supporter in Pope Francis,” who through his staff has responded to the author and is presented as “praising her work.” It quotes the following from a July 9 letter to Pardi from the Vatican.

“His holiness is grateful for the thoughtful gesture and for the feelings which it evoked, hoping for an always more fruitful activity in the service of young generations and the spread of genuine human and Christian values,” wrote Peter B. Wells, a senior official at the Vatican Secretariat of State, in a the letter The Guardian is reporting it has seen.  

While the letter gently calls the author to use her talents to spread “genuine human and Christian values,” The Guardian takes it as the pope’s endorsement of gender theory.

“Pope Francis sends letter praising gay children's book,” the paper’s headline states. “Italian book that explores different family types including same sex was banned by mayor of Venice, but pontiff becomes unlikely supporter,” reads the subtitle.

In a press release that Vatican spokesman Fr. Federico Lombardi sent to LifeSiteNews on Friday, the vice speaker of the Vatican, Ciro Benedettini, made clear that the friendly reply letter to the author in no way approves of attitudes or positions that are contrary to Catholic teaching and the Gospels.

The Vatican's statement also says that in the original letter from the secretariat of state Wells merely "acknowledged receipt" of the materials sent by Pardi, and also made clear that the letter was private and not meant for publication. 

"In no way does a letter from the Secretary of State intend to endorse behaviors and teachings not in keeping with the Gospel," says the statement, decrying the "manipulation" of the letter.

Benedettini said the blessing of the pope at the end of the letter was meant to be for the author herself, and not to affirm positions concerning gender theory that are contrary to the Church's teaching. Using the letter to this end is erroneous, he said.

Pope Francis has strongly condemned the notion of “gender theory” on numerous occasions, saying that it is an “error of the human mind that leads to so much confusion.”

Share this article

Advertisement
Featured Image
Shutterstock
Lisa Bourne

,

Poll suggests most US Catholics wrongly believe Pope Francis backs gay ‘marriage’

Lisa Bourne
By Lisa Bourne

August 28, 2015 (LifeSiteNews) -- A considerable majority of U.S. Catholics are in conflict with Church teaching on abortion and marriage, a new study says, and a startling number of those also believe Pope Francis backs homosexual “marriage.”

Despite Church teachings, Catholics in America also closely parallel the general populace in their support for abortion and homosexual “marriage,” falling short in the Biblical call to be “in the world but not of the world.”

The findings suggest what many Catholics have said is a climate of confusion in the midst of the Francis pontificate. Concerns over that confusion prompted a coalition of pro-family groups to respond with an international petition effort asking the pope to reaffirm Church teaching, drawing more than a half-million signatures.

The survey, conducted by Public Religions Research Institute, found that 60 percent of all U.S. Catholics favor legalized homosexual “marriage,” compared to 55 percent of all Americans. Likewise, 51 percent of Catholics think that abortion should be legal in all or most cases, with 53 percent of the general population holding this view.

The Catholic Church teaches that marriage is a sacramental union between one man and one woman, mirroring Christ and the Church respectively as bridegroom and bride.

The Church also teaches that life begins at conception, that each human life possesses dignity as a child of God and is to be afforded protection, making abortion an intrinsic evil.

Catholics, accounting for 22 percent of adults in the U.S. population, have a favorable view of Pope Francis, the study said, but they are very confused about his take on homosexual “marriage.”

Of the Catholics who back homosexual “marriage,” 49-percent also think the leader of the Catholic Church backs it along with them. Fifteen percent of those Catholics who oppose homosexual “marriage” also mistakenly believe Pope Francis supports it.

Pope Francis has made numerous statements in support of life, marriage and family, but the confusion remains.

Click "like" to support Catholics Restoring the Culture!

"After Ireland and the U.S. Supreme Court both approved same-sex 'marriage,' a strong reaffirmation of Church teaching could save the sacred institution of marriage, strengthen the family and dispel the lies of the homosexual revolution," TFP Student Action Director John Ritchie stated.  "Young Catholics -- even non-Catholics -- look to the Church as a beacon of morality and stability in our Godless culture, but some of our shepherds have issued confusing statements."

TFP Student Action is a part of the lay Catholic organization American Society for the Defense of Tradition, Family and Property, and is part of the alliance behind the Filial Appeal, the petition asking the Holy Father to reinforce Catholic teaching at the Vatican’s upcoming Synod on the Family in October.

Ritchie explained how the confusion was aiding the Church’s enemies, and warned of the potential consequences.

"This prayerful petition asks Pope Francis to clear up the moral confusion that's been spreading against Natural and Divine Law," he said. "If the enemies of the family continue to chip away at holy matrimony, the future of the family and civilization itself will be in even more serious peril."

At press time more than 500,000 signature had been gathered for the appeal, including five cardinals, 117 bishops and hundreds of well-known civic leaders.

Share this article

Advertisement

Customize your experience.

Login with Facebook