Michael Cook

Life is valuable…even for the severely disabled

Michael Cook
By Michael Cook
Image

August 21, 2012 (Mercatornet.com) - There can be no more difficult case for dispassionate discussion than the fate of Tony Nicklinson, a totally paralysed British man who wants to end his life. Last week the UK High Court denied his request for euthanasia.

After a catastrophic stroke in 2005, Mr Nicklinson is paralysed below the neck and unable to speak. He can move only his head and eyes. He communicates by blinking. Swallowing is laborious. He often coughs and needs to have saliva wiped from his face. Once a sports-event manager and rugby player based in Dubai, nowadays he writes his memoirs and watches a lot of television.

He describes his life in the bleakest terms imaginable: “dull, miserable, demeaning, undignified and intolerable. …it is misery created by the accumulation of lots of things which are minor in themselves but, taken together, ruin what’s left of my life.” Since 2007 his mind has been set on euthanasia.

Each of the three justices on the High Court took pains to express their sympathy for his plight (and the similar case of a man named Martin). But they reluctantly agreed that that the existing law on murder had to be affirmed. In England, euthanasia is still a crime. Even passionate supporters of legalised assisted suicide supported the Court’s decision. The head of Dying with Dignity in the UK, Sarah Wootton, commented: “his case goes way beyond what Dignity in Dying is calling for. We campaign for dying people to have the choice of an assisted death if they’re mentally competent and there are legal, upfront safeguards, and of course Tony is disabled, he’s not dying.”

But is death really the only solution to the dependence and limited possibilities of Mr Nicklinson’s existence? Perhaps it takes an extraordinary person, but even with locked-in syndrome, most people want to live. If the media didn’t suffer from congenital short-term memory loss, journalists would remember a French colleague who was even more locked-in than Tony Nicklinson. Jean-Dominique Bauby was the editor of the French edition of Elle when he suffered a massive stroke. He retained his capacity to think and blink (only with his left eye, though).

CLICK ‘LIKE’ IF YOU ARE PRO-LIFE!

Crippled as he was, he wrote an international best-seller, The Diving Bell and the Butterfly. It was a poetic reflection on his dependency which was drenched with mordant humour and utterly devoid of self-pity. Here is he is describing his meals:

“By means of a tube threaded into my stomach, two or three bags of a brownish fluid provide my daily caloric needs. For pleasure I have to turn to the vivid memory of tastes and smells, an inexhaustible reservoir of sensations. Once I was a master of recycling leftovers. Now I cultivate the art of simmering memories. You can sit down to a meal at any hour, with no fuss or ceremony. If it’s a restaurant, no need to call ahead. If I do the cooking, it’s always a success.”

He never mentions euthanasia and barely mentions death.

Bauby’s is far from being an extraordinary case. The largest-ever survey of chronic locked-in syndrome patients found last year that only 28 percent were unhappy. Very few of them were interested in euthanasia – only 7 percent—or had suicidal thoughts.

The author of the study, Steven Laureys of the Coma Science Group at the University Hospital of Liege in Belgium, admitted that his sample size was small – only 65 patients in France. But it confirmed other research into how people adapt to calamities. It also suggested ways to care for these patients. For instance, nearly all of them felt that they were not engaged in worthwhile activities. Many of them wanted more social interaction.

Dr Laureys believes that the situation of locked-in syndrome patients will improve substantially as more sophisticated technology becomes available. “I predict that in coming years, our view of this disease is really going to change,” he said. “It makes a huge difference to be able to read a book or go onto the internet at will.”

In the light of stories like these, perhaps we should recalibrate our notions of “worthwhile” and “dignified”. In fact, commented a Canadian neuroscientist unconnected to the Belgian study, “We cannot and should not presume to know what it must be like to be in one of these conditions. Many patients can find happiness in ways that we simply cannot imagine.”

Not that patients delight in their disability. A year may pass before they reach a steady level of subjective well-being, said Dr Laureys. Hence requests for euthanasia soon after a stroke or accident are not well-informed: “Recently affected [locked-in syndrome] patients who wish to die should be assured that there is a high chance they will regain a happy meaningful life.”

A couple of years ago, a woman who has lived with locked-in syndrome for more than 30 years, Maryannick Pavageau, was awarded the Légion d’honneur, France’s highest civil honour, precisely for leading the charge against euthanasia. (See last year’s article in MercatorNet here.) Mme Pavageau flatly denied that her life was miserable:

“All life is worth living. It can be beautiful, regardless of the state we are in. And change is always possible. That is the message of hope that I wish to convey. I am firmly against euthanasia because it is not physical suffering that guides the desire to die but a moment of discouragement, feeling like a burden… All those who ask to die are mostly looking for love.”

Might that be the case with Tony Nicklinson? Perhaps the money used to promote his case and to pay for his legal fees should have been spent on a trip to Brittany to seek counselling from Mme Pavageau.

Besides, there is a significant detail in his application for voluntary euthanasia. He doesn’t want to die; he only want to be able to die. The judgement pointed out that:

“At the moment he thinks that he would probably wish to end [his life] in a year or two, but he wants to establish the right to die with dignity at a time of his choosing.”

Even though his life is “dull, miserable, demeaning, undignified and intolerable” he still wants to hang on to it. This suggests that he could respond if he were given more affection and stimulation.

None of us – least of all me – would want to be in Tony Nicklinson’s predicament. I fear that I would react more like him than Mme Pavageau. But it would be a heartless society which prefers to respect his “autonomy” by giving him a lethal injection rather than giving him and his family more support, affection and friendship.

In the end, making our own happiness is the supreme choice we have to make in life. As a New Zealand rugby player with locked-in syndrome wrote in the BMJ a few years ago: “It is definitely a crazy, mixed-up world. I’m just glad to still be alive—most of the time anyway… Shit definitely happens; I just have to make the most of each day in my journey towards recovery.”

Michael Cook is editor of MercatorNet. This article reprinted under a Creative Commons License.

Truth. Delivered daily.

Get FREE pro-life, pro-family news delivered straight to your inbox. 

Select Your Edition:


Share this article

Advertisement
Featured Image
Cardinal Raymond Burke, prefect of the Apostolic Signatura, speaks to Thomas McKenna of Catholic Action Insight. Catholic Action Insight
Hilary White Hilary White Follow Hilary

Catholics shouldn’t sue one another: Cardinal Burke comments on Fr. Rosica’s lawsuit against blogger

Hilary White Hilary White Follow Hilary
By Hilary White

ROME, March 2, 2015 (LifeSiteNews.com) – Citing Scripture, Cardinal Raymond Burke told an interviewer this week that Catholics should not sue each other: “Our Lord in the Gospel and St. Paul in his First Letter to the Corinthians instruct us not to take our disputes to the civil forum, that we should be able, as Catholics, to resolve these matters among ourselves.”

The cardinal’s comments to the Traditionalist Catholic website Rorate Caeli follow an uproar in the Catholic media world last week when it was revealed that Vatican spokesman Father Thomas Rosica has threatened to sue a Canadian blogger for defamation in the civil courts.

Cardinal Burke, who served under Pope Benedict XVI and Pope Francis as the head of the Vatican’s highest court, is a noted expert on canon law. He told Rorate Caeli, “Unless the blogger has committed a calumny on someone's good name unjustly, I certainly don't think that that's the way we as Catholics should deal with these matters.”

“I think contact should be made. I presume that the Catholic blogger is in good faith, and if there’s someone in the hierarchy who is upset with him, the way to deal with it would be first to approach the person directly and try to resolve the matter in that way,” Burke added.

Fr. Rosica, a Canadian Basilian, is the English language press officer for the Vatican and founder of the Toronto-based Salt and Light Television network.

He sent the legal letter to David Domet, a Toronto music composer and part-time Catholic blogger who has long criticized what he says are Fr. Rosica’s departures from Catholic orthodoxy. The priest’s lawyer told Domet to remove nine separate items from his blog and apologize, but added that this would not necessarily remove the threat of the civil action.

The conflict was covered in a feature by Michael Voris’ Church Militant TV, and the internet’s Catholic blogger world exploded with indignation. So furious was the backlash that it got coverage by the US conservative news site, Breitbart. This followed dozens of blog posts, nearly unanimously calling the threatened legal action of a well-placed priest against a lay pensioner a “PR disaster” for Rosica. 

The uproar has launched Domet’s small blog, Vox Cantoris, into the international limelight, and has earned Fr. Rosica an avalanche of criticism. “Though Rosica publicly defends the right to freedom of speech and press, he is attempting to silence the blogger who has criticized him,” Austin Ruse, president of the Catholic Family and Human Rights Institute, wrote for Breitbart.

Among Domet’s criticisms of Fr. Rosica is his apparent support for the proposal by Cardinal Walter Kasper to allow divorced and civilly remarried Catholics, and others in “irregular” sexual unions, to receive Holy Communion.

Fr. Rosica has also recently come under fire for comments he made a year ago, in a lecture in Windsor, Ontario, in which he argued that Catholic doctrine could change. (See video below. Quotes can be found at 48:12.)

“Will this Pope re-write controversial Church doctrines?” Fr. Rosica said in the lecture, which was posted to Youtube. “No. But that isn't how doctrine changes. Doctrine changes when pastoral contexts shift and new insights emerge such that particularly doctrinal formulations no longer mediate the saving message of God's transforming love.”

Fr. Rosica continued: “Doctrine changes when the Church has leaders and teachers who are not afraid to take note of new contexts and emerging insights. It changes when the Church has pastors who do what Francis has been insisting: leave the securities of your chanceries, of your rectories, of your safe places, of your episcopal residences go set aside the small-minded rules that often keep you locked up and shielded from the world.”

In the Rorate Caeli interview, Cardinal Burke refuted the idea that the Church can change its “pastoral practice” without changing doctrine.

“I think it’s very important to address a false dichotomy that's been drawn by some who say, ‘Oh no, we’re just changing disciplines. We’re not touching the Church's doctrine.’ But if you change the Church’s discipline with regard to access to Holy Communion by those who are living in adultery, then surely you are changing the Church's doctrine on adultery.”

“You’re saying that, in some circumstances, adultery is permissible and even good, if people can live in adultery and still receive the sacraments. That is a very serious matter, and Catholics have to insist that the Church’s discipline not be changed in some way which would, in fact, weaken our teaching on one of the most fundamental truths, the truth about marriage and the family,” Cardinal Burke said.

Fr. Rosica recently criticized Cardinal Burke on his Twitter account by posting an article by Washington, DC’s Cardinal Donald Wuerl on “dissent” in the hierarchy, saying, “Cardinal Wuerl’s response to Burke (and dissenters).”

The priest has also had a confrontational relationship with the pro-life movement for years.

In 1996, Fr. Rosica called the police on pro-life advocates who were leafletting in protest at a lecture by famous dissident Gregory Baum at the University of Toronto’s Newman Centre.

In 2009, Fr. Rosica wrote against objections to the lavish Catholic funeral for US Senator Ted Kennedy’s in Boston. He excoriated the pro-life movement for what he called their lack of “civility.”

“Civility, charity, mercy and politeness seem to have dropped out of the pro-life lexicon,” Fr. Rosica wrote. “To recognize and bring out the sin in others means also recognizing one’s self as a sinner and in need of God’s boundless mercy.

“Let us pray that we will become more and more a people, a church and a community overflowing with mercy.”

Share this article

Advertisement
Featured Image
Greg Rohrbough, J.D.

Duck Commander Phil Robertson’s CPAC speech was viral in so many ways

Greg Rohrbough, J.D.
By

Last week, the winner of the 2015 Citizens United/CPAC Andrew Breitbart Defender of the First Amendment Award was “Duck Commander” Phil Robertson, paterfamilias of the Duck Dynasty Robertson family. In doing so, they were giving Phil the CPAC stage for a speech, knowing that he would speak his unvarnished thoughts. One doubts they expected his topic.

After bringing out his heavily-duct-taped Bible and telling politicians to keep theirs with them, Phil went on the offensive – against sexually transmitted diseases (STDs). He quoted the federal Centers for Disease Control, which estimates that more than 100 million Americans now have a sexually transmitted infection.

“I don’t want you to become ill. I don’t want you to come down with a debilitating disease. I don’t want you to die early,” Robertson said.

Phil’s solution? One older than Christianity, as old as common sense itself. “If you’re disease-free, if she’s disease-free, you marry. You keep your sex right there. You won’t get sick from a sexually-transmitted disease!”

Logic and mathematics would seem to agree. According to Robertson, his goal was to show love to the listeners. But several left-wing websites didn’t see it that way.

“He certainly used his speech to hate very well. I guess that's the criteria. Who can say the sickest, most vile things about center-left Americans wins!” according to John Amato of Crooks & Liars.

The Huffington Post took offense at his attributing the rise in STDs to the beatniks and hippies.

To their credit, MSNBC acknowledged Phil’s numbers, saying, “For the record, Robertson’s [sic] has his numbers correct. A CDC report from February of 2013 estimated more than 110 [million] cases of sexually transmitted infections in America with about 20 billion [sic, MSNBC’s number] new infections each year at a cost of ‘nearly $16 billion in direct medical costs.’”

The network site then blasted him for comparing ISIS to the Nazis, Communists, and Imperial Japanese.

Click "like" if you want to defend true marriage.

Robertson clearly didn’t care what MSNBC thought, though. “You want a Godly, Biblical, medically safe option? One man, one woman, married, for life,” he said.

“What do you call the 110 million people who have sexually transmitted illnesses?” he continued. “It’s the revenge of the hippies! Sex, drugs, and rock ‘n’ roll have come back to haunt us in a bad way!”

But the big question is – is Phil right or wrong? According to the CDC’s website, “Almost every sexually active person will acquire HPV [Human Papillomavirus] at some point in their lives.”

“Sexually active” would seem to indicate activity with new or multiple partners, rather than this Duck Doctor Phil’s Prescription.

But still – “Almost every…person.” That’s quite a few – the website also says, “about 79 million Americans are currently infected with HPV. About 14 million people become newly infected each year.” While it is the most prevalent venereal disease, HPV is only one of many.

Generally, HPV’s symptoms are more a painful nuisance than life-threatening – genital warts, often only appearing years after the initial infection. But there are also life-threatening illnesses such as cervical cancer, which HPV causes.

Much more frightening, however, is the specter of HIV/AIDS. According to the CDC, there are about 1.2 million people currently living with HIV, and as many as 50,000 new cases a year, with 63 to 66 percent of those being “MSM,” or “Men who have Sex with Men.” Sadly, the lion’s share of new HIV infections is found in the 13-24 age group; despite being 16 percent of the nation’s population, they account for 26 percent of all new infections, with 72 percent of those being young MSM. While HIV is treatable, there is still no cure.

Although HIV, as well as the current increase in syphilis and hepatitis, are primarily targeting homosexual males, heterosexuals with multiple partners are by no means off the hook. As well as HPV, herpes, drug-resistant gonorrhea and chlamydia are on the rise, as well. The year 2013 saw 1.4 million cases of chlamydia and 820,000 new cases of gonorrhea, and the CDC estimates that one person in every six in the U.S. between the ages of 14 and 49 has herpes.

Criticize Phil all you like, folks – he doesn’t mind. He’s only saying this because he cares.

Listen to him again: “I don’t want you to become ill. I don’t want you to come down with a debilitating disease. I don’t want you to die early.”

“And if you hate me because I told you that,” he said, “I told you, my love for you is not contingent on how you feel about me. I love you anyway. I don’t want you to see you die early or get sick. I’m trying to help you, for cryin’ out loud! America, if I didn’t care about you, why would I bring this up?”

From this CPAC attendee’s perspective, Phil’s speech was not only important from a physical health perspective, it also, along with that duct-taped Bible of his, reminds us of the words of Charles Spurgeon: “A Bible that’s falling apart usually belongs to someone who isn’t.”

Greg Rohrbough, J.D., has been director of government relations for the Meredith Advocacy Group since 2006.

Advertisement
Featured Image
CBC video screenshot
Steve Weatherbe

Former abortionist who failed to kill unborn baby hit with $1 million lawsuit: baby was born with hole in heart

Steve Weatherbe
By

OTTAWA, March 2, 2015 (LifeSiteNews.com) – An Ontario mother of a baby born by mistake is suing the former doctor who botched her abortion for $1 million for his “gross negligence” and “medical malpractice.”

Tania Brown already had four children when she went to Dr. Michel Prevost in Almonte, Ontario in early 2011 for a medical (or pharmaceutical) abortion to prevent a fifth, which her doctor had advised might have birth defects. Several months later she suspected Prevost’s one-two punch of methotrexate (a poison to kill the baby) and misoprostol (to expel the corpse a week later) had not worked. An ultrasound confirmed a beating heart.

Too late for an abortion now, she gave birth, in May, to a baby with “a smaller brain; he had a hole in his heart; he had something wrong with his palate.” She gave him up for adoption.

Click "like" if you are PRO-LIFE!

Dr. Prevost relinquished his medical licence earlier this month with the certainty that if he didn’t, the Ontario College of Physicians and Surgeons would expel him after an investigation found him “incompetent in his practice of obstetrics and gynecology.”  They looked into 28 abortion cases, two so badly “botched” that the babies survived.

Small wonder the whole business sent Brown into a “debilitating depression,” but her lawyer Ralph Lee told the CBC the case “brings up larger issues…the issue of a woman’s access to abortion.”

Basically, Prevost couldn’t get the dosages right. Methotrexate, MedicineNet.com warns, “has infrequently caused serious (sometimes fatal) side effects.” These include severe azotemia (too much blood urea nitrogen), severe blood infection, stomach and intestinal bleeding, and perforation.

Advertisement

Customize your experience.

Login with Facebook