Michael Cook

Life is valuable…even for the severely disabled

Michael Cook
By Michael Cook
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August 21, 2012 (Mercatornet.com) - There can be no more difficult case for dispassionate discussion than the fate of Tony Nicklinson, a totally paralysed British man who wants to end his life. Last week the UK High Court denied his request for euthanasia.

After a catastrophic stroke in 2005, Mr Nicklinson is paralysed below the neck and unable to speak. He can move only his head and eyes. He communicates by blinking. Swallowing is laborious. He often coughs and needs to have saliva wiped from his face. Once a sports-event manager and rugby player based in Dubai, nowadays he writes his memoirs and watches a lot of television.

He describes his life in the bleakest terms imaginable: “dull, miserable, demeaning, undignified and intolerable. …it is misery created by the accumulation of lots of things which are minor in themselves but, taken together, ruin what’s left of my life.” Since 2007 his mind has been set on euthanasia.

Each of the three justices on the High Court took pains to express their sympathy for his plight (and the similar case of a man named Martin). But they reluctantly agreed that that the existing law on murder had to be affirmed. In England, euthanasia is still a crime. Even passionate supporters of legalised assisted suicide supported the Court’s decision. The head of Dying with Dignity in the UK, Sarah Wootton, commented: “his case goes way beyond what Dignity in Dying is calling for. We campaign for dying people to have the choice of an assisted death if they’re mentally competent and there are legal, upfront safeguards, and of course Tony is disabled, he’s not dying.”

But is death really the only solution to the dependence and limited possibilities of Mr Nicklinson’s existence? Perhaps it takes an extraordinary person, but even with locked-in syndrome, most people want to live. If the media didn’t suffer from congenital short-term memory loss, journalists would remember a French colleague who was even more locked-in than Tony Nicklinson. Jean-Dominique Bauby was the editor of the French edition of Elle when he suffered a massive stroke. He retained his capacity to think and blink (only with his left eye, though).

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Crippled as he was, he wrote an international best-seller, The Diving Bell and the Butterfly. It was a poetic reflection on his dependency which was drenched with mordant humour and utterly devoid of self-pity. Here is he is describing his meals:

“By means of a tube threaded into my stomach, two or three bags of a brownish fluid provide my daily caloric needs. For pleasure I have to turn to the vivid memory of tastes and smells, an inexhaustible reservoir of sensations. Once I was a master of recycling leftovers. Now I cultivate the art of simmering memories. You can sit down to a meal at any hour, with no fuss or ceremony. If it’s a restaurant, no need to call ahead. If I do the cooking, it’s always a success.”

He never mentions euthanasia and barely mentions death.

Bauby’s is far from being an extraordinary case. The largest-ever survey of chronic locked-in syndrome patients found last year that only 28 percent were unhappy. Very few of them were interested in euthanasia – only 7 percent—or had suicidal thoughts.

The author of the study, Steven Laureys of the Coma Science Group at the University Hospital of Liege in Belgium, admitted that his sample size was small – only 65 patients in France. But it confirmed other research into how people adapt to calamities. It also suggested ways to care for these patients. For instance, nearly all of them felt that they were not engaged in worthwhile activities. Many of them wanted more social interaction.

Dr Laureys believes that the situation of locked-in syndrome patients will improve substantially as more sophisticated technology becomes available. “I predict that in coming years, our view of this disease is really going to change,” he said. “It makes a huge difference to be able to read a book or go onto the internet at will.”

In the light of stories like these, perhaps we should recalibrate our notions of “worthwhile” and “dignified”. In fact, commented a Canadian neuroscientist unconnected to the Belgian study, “We cannot and should not presume to know what it must be like to be in one of these conditions. Many patients can find happiness in ways that we simply cannot imagine.”

Not that patients delight in their disability. A year may pass before they reach a steady level of subjective well-being, said Dr Laureys. Hence requests for euthanasia soon after a stroke or accident are not well-informed: “Recently affected [locked-in syndrome] patients who wish to die should be assured that there is a high chance they will regain a happy meaningful life.”

A couple of years ago, a woman who has lived with locked-in syndrome for more than 30 years, Maryannick Pavageau, was awarded the Légion d’honneur, France’s highest civil honour, precisely for leading the charge against euthanasia. (See last year’s article in MercatorNet here.) Mme Pavageau flatly denied that her life was miserable:

“All life is worth living. It can be beautiful, regardless of the state we are in. And change is always possible. That is the message of hope that I wish to convey. I am firmly against euthanasia because it is not physical suffering that guides the desire to die but a moment of discouragement, feeling like a burden… All those who ask to die are mostly looking for love.”

Might that be the case with Tony Nicklinson? Perhaps the money used to promote his case and to pay for his legal fees should have been spent on a trip to Brittany to seek counselling from Mme Pavageau.

Besides, there is a significant detail in his application for voluntary euthanasia. He doesn’t want to die; he only want to be able to die. The judgement pointed out that:

“At the moment he thinks that he would probably wish to end [his life] in a year or two, but he wants to establish the right to die with dignity at a time of his choosing.”

Even though his life is “dull, miserable, demeaning, undignified and intolerable” he still wants to hang on to it. This suggests that he could respond if he were given more affection and stimulation.

None of us – least of all me – would want to be in Tony Nicklinson’s predicament. I fear that I would react more like him than Mme Pavageau. But it would be a heartless society which prefers to respect his “autonomy” by giving him a lethal injection rather than giving him and his family more support, affection and friendship.

In the end, making our own happiness is the supreme choice we have to make in life. As a New Zealand rugby player with locked-in syndrome wrote in the BMJ a few years ago: “It is definitely a crazy, mixed-up world. I’m just glad to still be alive—most of the time anyway… Shit definitely happens; I just have to make the most of each day in my journey towards recovery.”

Michael Cook is editor of MercatorNet. This article reprinted under a Creative Commons License.

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Video: Belgian police put a violent end to a legal pro-life rally in Brussels

John-Henry Westen John-Henry Westen Follow John-Henry
By John-Henry Westen
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BRUSSELS, March 31, 2015 (LifeSiteNews.com) -- Belgian police used force against pro-lifers holding a legal, peaceful picket Tuesday in the center of Brussels, near the European Parliament buildings.  The pro-life rally, led by activists from Poland, was surrounded by an angry mob of abortion supporters, but when the police intervened they forcibly removed the pro-life signs, and even a Polish flag, saying they were provoking aggression.

The pro-life rally, which displayed graphic abortion signs, was legally registered, and organized by Fundacja Pro, a very active pro-life group from Poland, along with Michał Marusik, a Polish Member of European Parliament, and the Instigos Institute.

Kaja Godek, one of Poland’s leading pro-life activists, described the scene at the Luxembourg Square in Brussels for LifeSiteNews:

When we display graphic abortion pictures on the streets of Poland, the reaction we get is mostly sympathetic. In Brussels, we met with aggression and a hysterical reaction. Some furious people surrounded us screaming that we were sick and that the photographs of abortion victims were a lie.

Jacek Januszewski, one of the youth participants, told LifeSiteNews, “They screamed vulgarities and obscene insults, specifically directed at the ladies in our group. They threw firecrackers, physically pushed us, and tried to steal our banners.”

Describing the actions of the police, Januszewski said, “They formed a circle around our group, but were facing us, as if we were the source of aggression, not the mob around us.” He continued, “Even after one of the policemen got hit on the back with something thrown at us by the mob, they still acted as if it was us who caused the danger. We were just standing there in shock."

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“At one point a man dressed in civilian clothes approached us all red in the face, pushed us and tried to take our banners by force,” said Januszewski. “When we resisted, he produced a police ID. We asked him what he was doing and what law allowed him to disrupt a legal demonstration like that. He screamed back at us: ‘I am the law in Brussels.’”

Godek commented on the undercover officer too. “The man in civilian clothes kept pointing to one specific banner we were holding, showing the face of Adolf Hitler with a caption ‘Hitler legalized abortion on demand for Poles.’ [The undercover policeman] was all red in the face and kept saying he didn't like it and that it was upsetting everybody. We told him we were being attacked and needed protection. He said that we were the danger, we were provoking violence.”

Watch videos (exchanges between police and protesters are audible and in English):

Part 1

Part 2

Part 3

Part 4

Part 5

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LifeSite Writers 2015
Steve Jalsevac Steve Jalsevac Follow Steve

2 Days Left - Can you donate just $5 or more?

Steve Jalsevac Steve Jalsevac Follow Steve
By Steve Jalsevac

This is an urgent reminder that we have just 2 days left to reach our annual Spring campaign goal of $175,000.
 
Please consider supporting our mission to build a Culture of Life by making the most generous donation you can today.

Have you ever wondered who is behind LifeSite, and what our organization does with the money you donate?
 
Sometimes we find that readers of LifeSite, new readers in particular, understandably do not realize the size and scope of our mission: including not just how many millions of people read LifeSite (6 million people last month alone, for the record), but also the number of people and resources required to keep this unique international news service going every day.
 
It is quite an eye-opener when we list everything involved. Given the exponential growth of LifeSite over the past few years, it seems time to present an update. This should help you to understand why we must set our quarterly campaign goals at the very least at the levels that we do each time.

Every single member of the LifeSite team is passionately dedicated to our mission. Many have families with children and all depend on prayer (we have a staff prayer conference call every morning at 9:30 a.m.) to do this challenging work. They are also highly principled persons who see this work as being much more of personal mission than a “job”.

They care deeply about the issues that we write about and their impact on the world. At least several were on the “other side” in the past and experienced profound conversions to pro-life, pro-family beliefs.

In addition to the English language LifeSite, we also publish two other versions of LifeSite. There is the Spanish language Notifam and the Portuguese language Notifam.  These two services have been completely re-designed and their readership has dramatically increased in the past several months.

Almost all of our journalists are paid salaries or an hourly rate (part-timers). Nearly half are full-time, and the rest are part-time with widely varying total hours per month. A small number of the part-timers are able to offer their work to LifeSite as a no-charge gift to the pro-life and pro-family cause.

Almost all of the news reporters work from their homes. Our one office is located in Front Royal, Virginia in the Human Life International building. Much of the LifeSite, Canada administration work (payroll, bookkeeping, mail and donation receiving, etc.) is contracted to Campaign Life Coalition (CLC) in Toronto. We are very grateful for CLC’s assistance.

Since the introduction of our dramatically new website last year, we have also been able to add prominent paid bloggers to the LifeSite team. In addition to our own bloggers, other notable pro-life bloggers such as Jill Stanek and Ryan Bomberger permit us to re-publish and often give much wider exposure to posts from their blog sites.

Back in September 1997, it was just John-Henry Westen and myself, the two founding staff of Lifesite. Things have certainly changed since then.

CURRENT NEWS TEAM

North America

1.  John-Henry Westen – Co-founder, Editor-in-Chief, journalist 
2.  Steve Jalsevac – Co-founder, managing director, editor, journalist
3.  John Jalsevac – Website development, petitions, journalist
4.  Patrick Craine – Managing editor, journalist, Canadian bureau chief
5.  Ben Johnson – US bureau chief, journalist
6.  Dustin Siggins – Washington DC bureau reporter and media outreach
7.  Kirsten Anderson – Washington DC and region reporter
8.  Lisa Bourne – Journalist
9.  Pete Baklinski – Journalist
10. Ted Baklinski – Journalist
11. Lianne Lawrence – Toronto journalist and LSN Canada donor relations
12. Steve Weatherbe – Journalist
13. Drew Belsky – Journalist

International

14. Hilary White (Italy) – Rome and Europe reporter
15. Jeanne Smits (Paris, France) – European reporter
16. Andrew Smith – Australian reporter
17. Michelle Kaufman – New Zealand reporter
18. Matthew Hoffman – Latin American reporter
19. Gualberto Guilherme Araujo – Brazilian editor
20. Gualberto Garcia Jones – Latin America bureau chief
21. Sophia Vazquez Mellado – Spanish language reporter
22. Mei-Li Beane – Spanish Language reporter
23. Natalia Duehlom – Polish correspondent
24. Matthew McCusker – London correspondent

Bloggers

25. Anthony Esolen
26. Matt Fradd
27. Abby Johnson
28. Jonathon van Maren
29. Melanie Pritchard

SUPPORT TEAM

30. Jon Fidero – Development Director
31. Andy Parrish – Marketing, media, public relations
32. Clare Magaad – LSN U.S. Office Manager
33. Megan Mulherin – Database management, Donor relations coordinator
34. Linda Wilson – Donor relations
35. Tommy Farrel – Donor relations
36. Theresa Jalsevac – Daily news subscriber services, article publishing
37. Jacob Westen – Article publishing

EXTERNAL SERVICES

LifeSite employs the services of a wide variety of companies and individuals for website design and development, video production, graphic design, donation processing, mass emailing of the Daily News, web hosting, payroll, legal work, marketing of LifeSite and much more.

Some of these external costs are in the six-figure level, given the large volume and variety of material that we publish, the cutting edge complexity of the website and the high level of traffic that LifeSite must now be able to handle.

We also have on-going and major electronic equipment costs since we are a digital service requiring high quality, reliable and the most up-to-date digital resources.

Finally, our team, and especially John-Henry, have been required to do a lot more travelling in recent years to cover major stories on site and to attend and be actively involved in very important meetings in several nations.  
 
The Marches for life in Washington, DC, Ottawa Canada and Rome, Italy have required a team of LSN staff. As well, we are the original organizers of the Rome Life Forum in Vatican City that is now billed as a Voice of the Family (which LifeSite co-founded) event and is co-sponsored by a number of International groups.

I hope this has helped you to much better understand our financial needs and will encourage any who might have been hesitant to donate to re-consider and send a generous gift for the LifeSite mission.

We are amazed that so much has been accomplished over the years, thanks especially to the generosity of those who believe in what we do and have wanted to express their appreciation for this work and what it has meant to them.

Please join our other supporters today with your gift.
 
You can also donate by phone or mail. We would love to hear from you!

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Courtesy of Stand True Ministries
Bryan Kemper Follow Bryan

10 years ago today, Terri Schiavo died an agonizing death. I was with her family. Where were you?

Bryan Kemper Follow Bryan
By Bryan Kemper
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March 31, 2015 (StandTrue.com) -- For twenty-four years I have been involved with pro-life work in one way or another. Over those twenty-four years I have talked to thousands of people about their involvement, why they got involved, how they got involved and what motivates them to continue. We have talked about what happened in 1973 and where were all the Christians when Roe vs. Wade was passed. We would wonder why Christians would ignore human rights and own slaves in the time of the Dred Scott decision. We would tell stories about the few brave Christians that hid Jews during the Holocaust and proclaim that if it were we in those times we would have been a voice. If we were around in those days we would have risked all to save an innocent life; that is what we said, at least.

Ten years ago a young woman in Florida who was handicapped began an agonizing and painful journey towards death. Her husband, who had once made a vow to love and honor her through good times and bad, murdered her on national television. Her husband, who had already broken his vows to her by living with another woman and fathering children with her, went to court to have his wife starved and dehydrated to death. Terri Schiavo held onto life and fought for 13 days before finally dying on Thursday, March 31, 2005.

When I arrived in Florida one week before her death I expected to see thousands and thousands of Christians in front of the hospice praying, singing and crying out for Terri. I expected to see all those people who said, “I would have been there to stand up if I were around in the times of Roe vs. Wade or during the Holocaust.” I was sadly disappointed.

I walked up and saw maybe 150 people at most — some of them familiar faces from the pro-life movement, some of them just wanting to be on TV. I started to walk around and ask where people were from and most of them were from out of town; it was hard to find anyone from the Tampa area there to stand up for Terri. For years I wondered where the Christians were when Roe vs. Wade was passed, and now I had the answer.

I spent the first day walking around the crowd praying with people, talking about what could be done and simply being there in solidarity with our sister as she was dying. When I arrived the second day I talked to Terri’s sister whom I had met in Washington, DC, in January, when I volunteered my services to the family. I was asked to help guard the family and escort them around as everyone was swarming them.

I spent a lot of time just sitting with them and listening to stories about Terri and her life growing up. Her dad told a story about when Terri ran over a cat and how upset she was over this poor little cat. The friends shared beautiful stories and memories that I will treasure forever.

During this time we also spent a lot of time in prayer, with many different Christian leaders and friends. Everyone would be talking about a possible option and then someone would just stop and say, “Let’s pray.” There was more spontaneous prayer than I had ever seen. I would walk among the people there in support and see small groups up and down the street praying, singing hymns and just reading the Scriptures out loud. There may not have been a large group there, but they were dedicated and focused on prayer.

I spent a lot of time walking the family through the media circus to and from the hospice trying to give them a little privacy. I would walk Terri’s dad through the crowd every night as he thanked all the supporters for being there for Terri.

I talked to many of the behind-the-scenes media people who were obviously shaken by this tragedy. I saw people from all different walks of life and political and religious backgrounds taking a stand. There were many non-Christian people there in support of Terri, and dozens of handicapped people from a group called Not Dead Yet. I even spent time in prayer with the Rev. Jesse Jackson as he came to help the family and speak out for Terri. I never in a million years would have believed that I would sit in a room praying with Randal Terry, Jesse Jackson and Sean Hannity.

Each night at about 11:00 PM I would leave the hospice area and go get something to eat and try to catch up on some computer work and grab a few hours of sleep. I talked to a lot of people at different restaurants that would ask us what was really happening there. One night Terri’s brother, Bobby, came out to eat with us. When he left, the people there asked us questions and wanted to know the truth about the whole situation; they were shocked when they got the true facts about Terri.

On Wednesday night I went to the hotel and was especially saddened as we were reaching 13 days. My friend Will and I sat in the pool at the hotel at 2:00 AM discussing the past week and what else could have been done. I finally got to sleep at about 3:00 AM. Early the next morning, I was awoken by Will telling me that Terri had died.

We quickly packed our bags and went to the car to drive over to the hospice a few blocks away. As I got into the car it really began to hit me what had just happened and I started to cry. I picked up my cell phone and called my wife and children; I just needed to hear their voices and tell them I loved them.

I got to the hospice and stood guard outside the room the family was in to give them some privacy. The room was tucked in behind all the major media trucks and production areas. I watched as many of the media producers and reporters were fighting back tears. I watched reporters hugging the family and giving condolences; they were truly touched by Terri’s family. Many of the media that I had gotten to know expressed their grief to me, some of them on-air personalities who were affected greatly.

After the family was done making their statements for the day, I made my rounds to offer my condolences and say my goodbyes. I told the family about all the Stand True supporters and family that had asked me to send their best wishes and prayers. I thanked them for their strength and resolve in the fight for Terri’s life. I let them know that we at Stand True will never let Terri’s name die and that we will continue the fight for life and others like Terri.

I will never forget and I will never stop telling her story. 

HTTP://WWW.TERRISFIGHT.ORG

Also read Father Frank Pavone’s memory of his time with Terri.

HTTP://WWW.WASHINGTONTIMES.COM/NEWS/2015/MAR/30/FRANK-PAVONE-TERRI-SCHIAVOS-INCONVENIENT-LIFE/

Reprinted with permission from Stand True.

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