Michael Cook

Opinion

Life is valuable…even for the severely disabled

Michael Cook
Image

August 21, 2012 (Mercatornet.com) - There can be no more difficult case for dispassionate discussion than the fate of Tony Nicklinson, a totally paralysed British man who wants to end his life. Last week the UK High Court denied his request for euthanasia.

After a catastrophic stroke in 2005, Mr Nicklinson is paralysed below the neck and unable to speak. He can move only his head and eyes. He communicates by blinking. Swallowing is laborious. He often coughs and needs to have saliva wiped from his face. Once a sports-event manager and rugby player based in Dubai, nowadays he writes his memoirs and watches a lot of television.

He describes his life in the bleakest terms imaginable: “dull, miserable, demeaning, undignified and intolerable. …it is misery created by the accumulation of lots of things which are minor in themselves but, taken together, ruin what’s left of my life.” Since 2007 his mind has been set on euthanasia.

Each of the three justices on the High Court took pains to express their sympathy for his plight (and the similar case of a man named Martin). But they reluctantly agreed that that the existing law on murder had to be affirmed. In England, euthanasia is still a crime. Even passionate supporters of legalised assisted suicide supported the Court’s decision. The head of Dying with Dignity in the UK, Sarah Wootton, commented: “his case goes way beyond what Dignity in Dying is calling for. We campaign for dying people to have the choice of an assisted death if they’re mentally competent and there are legal, upfront safeguards, and of course Tony is disabled, he’s not dying.”

But is death really the only solution to the dependence and limited possibilities of Mr Nicklinson’s existence? Perhaps it takes an extraordinary person, but even with locked-in syndrome, most people want to live. If the media didn’t suffer from congenital short-term memory loss, journalists would remember a French colleague who was even more locked-in than Tony Nicklinson. Jean-Dominique Bauby was the editor of the French edition of Elle when he suffered a massive stroke. He retained his capacity to think and blink (only with his left eye, though).

CLICK ‘LIKE’ IF YOU ARE PRO-LIFE!

Crippled as he was, he wrote an international best-seller, The Diving Bell and the Butterfly. It was a poetic reflection on his dependency which was drenched with mordant humour and utterly devoid of self-pity. Here is he is describing his meals:

“By means of a tube threaded into my stomach, two or three bags of a brownish fluid provide my daily caloric needs. For pleasure I have to turn to the vivid memory of tastes and smells, an inexhaustible reservoir of sensations. Once I was a master of recycling leftovers. Now I cultivate the art of simmering memories. You can sit down to a meal at any hour, with no fuss or ceremony. If it’s a restaurant, no need to call ahead. If I do the cooking, it’s always a success.”

He never mentions euthanasia and barely mentions death.

Bauby’s is far from being an extraordinary case. The largest-ever survey of chronic locked-in syndrome patients found last year that only 28 percent were unhappy. Very few of them were interested in euthanasia – only 7 percent—or had suicidal thoughts.

The author of the study, Steven Laureys of the Coma Science Group at the University Hospital of Liege in Belgium, admitted that his sample size was small – only 65 patients in France. But it confirmed other research into how people adapt to calamities. It also suggested ways to care for these patients. For instance, nearly all of them felt that they were not engaged in worthwhile activities. Many of them wanted more social interaction.

Dr Laureys believes that the situation of locked-in syndrome patients will improve substantially as more sophisticated technology becomes available. “I predict that in coming years, our view of this disease is really going to change,” he said. “It makes a huge difference to be able to read a book or go onto the internet at will.”

In the light of stories like these, perhaps we should recalibrate our notions of “worthwhile” and “dignified”. In fact, commented a Canadian neuroscientist unconnected to the Belgian study, “We cannot and should not presume to know what it must be like to be in one of these conditions. Many patients can find happiness in ways that we simply cannot imagine.”

Not that patients delight in their disability. A year may pass before they reach a steady level of subjective well-being, said Dr Laureys. Hence requests for euthanasia soon after a stroke or accident are not well-informed: “Recently affected [locked-in syndrome] patients who wish to die should be assured that there is a high chance they will regain a happy meaningful life.”

A couple of years ago, a woman who has lived with locked-in syndrome for more than 30 years, Maryannick Pavageau, was awarded the Légion d’honneur, France’s highest civil honour, precisely for leading the charge against euthanasia. (See last year’s article in MercatorNet here.) Mme Pavageau flatly denied that her life was miserable:

“All life is worth living. It can be beautiful, regardless of the state we are in. And change is always possible. That is the message of hope that I wish to convey. I am firmly against euthanasia because it is not physical suffering that guides the desire to die but a moment of discouragement, feeling like a burden… All those who ask to die are mostly looking for love.”

Might that be the case with Tony Nicklinson? Perhaps the money used to promote his case and to pay for his legal fees should have been spent on a trip to Brittany to seek counselling from Mme Pavageau.

Besides, there is a significant detail in his application for voluntary euthanasia. He doesn’t want to die; he only want to be able to die. The judgement pointed out that:

“At the moment he thinks that he would probably wish to end [his life] in a year or two, but he wants to establish the right to die with dignity at a time of his choosing.”

Even though his life is “dull, miserable, demeaning, undignified and intolerable” he still wants to hang on to it. This suggests that he could respond if he were given more affection and stimulation.

None of us – least of all me – would want to be in Tony Nicklinson’s predicament. I fear that I would react more like him than Mme Pavageau. But it would be a heartless society which prefers to respect his “autonomy” by giving him a lethal injection rather than giving him and his family more support, affection and friendship.

In the end, making our own happiness is the supreme choice we have to make in life. As a New Zealand rugby player with locked-in syndrome wrote in the BMJ a few years ago: “It is definitely a crazy, mixed-up world. I’m just glad to still be alive—most of the time anyway… Shit definitely happens; I just have to make the most of each day in my journey towards recovery.”

Michael Cook is editor of MercatorNet. This article reprinted under a Creative Commons License.



Share this article

Advertisement
Featured Image
A photo of Kim Tucci at 25 weeks gestation Erin Elizabeth Photography
Pete Baklinski Pete Baklinski Follow Pete

News,

‘Little miracles’: Mom gives birth to naturally-conceived quintuplets after refusing ‘selective reduction’

Pete Baklinski Pete Baklinski Follow Pete
Image
An ultrasound of the five different compartments, each with its own baby, inside Kim's womb.

AUSTRALIA, February 5, 2016 (LifeSiteNews) -- A 26-year-old Australian mom has given birth to five healthy babies, all conceived naturally, after refusing the doctor’s advice that she must abort three of them in order to give the remaining two a better chance at life. 

“After my initial ultrasound I was told I could consider the selection method to give 2 babies the best chance in life,” wrote mom Kim Tucci in a Facebook post last September. 

“I watched a YouTube video on the procedure and I cried. I could never do that! Was I selfish for not giving two the chance of 100% survival? All I knew is that I already love them and that every heart beat I heard I connect with them more. For me life starts when a heart starts beating and all I know for sure is that I will do whatever it takes to bring them into this world healthy,” she wrote. 

Last Thursday Kim and her husband Vaughn welcomed the five new members into their family — one boy and four girls —increasing the number of their children from 3 to 8. The babies were born at 30 weeks, 10 weeks early, due to insufficient space in Kim’s womb. They weighed on average about 2.5 pounds. 

The quintuplets’ story began last March, after Kim and Vaughn had been trying for six months to conceive just one more child for their family. Due to health complications, Kim wondered if she would ever become a mother again. 

After what she thought was an extra long cycle, she decided to take a pregnancy test. 

“I was feeling tired and a little nauseated and thought I would take a pregnancy test just to get the ‘what if’ out of my head. To my shock and utter excitement it was positive,” she wrote on a Facebook post.

The parents got the shock of their lives when doctors confirmed in an ultrasound examination that there was not one baby, but five. 

“After a long wait for the ultrasound we finally went in. The sonographer told me there were multiple gestational sacks, but she could only see a heart beat in two. I was so excited! Twins!”

“I was moved to another machine for a clearer view and had the head doctor come in and double check the findings. She started to count, one, two, three, four, five. Did i hear that correctly? Five? My legs start to shake uncontrollably and all i can do is laugh. The sonographer then told me the term for five is ‘quintuplets,’” Kim wrote.

Even though Kim began to feel stretched to the limit with all those human lives growing inside her, she chose to focus on her babies, and not herself, referring to them as “my five little miracles.” 

“It's getting harder as each day passes to push through the pain, every part of my body aches and sleeping is becoming very painful. No amount of pillows are helping support my back and belly. Sometimes I get so upset that I just want to throw my hands up and give in.”

“Sometimes my pelvis becomes so stiff I can barely walk and my hips feel like they are grinding away constantly. I'm finding it hard to eat as I basically have no room left in my stomach, and the way it is positioned it's pushed all the way back with the babies leaning against it.” 

“My skin on my belly is so stretched its painful and hot to touch. It literally feels like I have hives! No amount of cream helps relieve the discomfort. I have a lot of stretch marks now. Dealing with such a huge change in my body is hard.” 

“Is it all worth it? Yes!!!! I will keep pushing through,” she wrote in one Facebook post days before the babies were born. 

The newborns' names are Keith, Ali, Penelope, Tiffany, and Beatrix. They were born at King Edward Memorial Hospital in Subiaco, Western Australia. Mother and babies are reported to be doing well. 



Share this article

Advertisement
Featured Image
Jordanian Prince Zeid Ra'ad Zeid Al-Hussein, the UN's High Commissioner for Human Rights UN Photo/Paulo Filgueiras
Pete Baklinski Pete Baklinski Follow Pete

News

UN rights chief tells Catholic countries to legalize abortion over Zika virus: bishops and cardinal react

Pete Baklinski Pete Baklinski Follow Pete

GENEVA, February 5, 2016 (LifeSiteNews) -- The United Nations, following the lead of international abortion activists, is now urging Latin American countries hit by the mosquito-borne Zika virus to lift restrictions on abortion for pregnant women who have contacted the virus and whose pre-born children may be at risk for birth defects, including having smaller than normal heads. 

The UN human rights office said today that it is not enough for South American countries to urge women to postpone pregnancy without also offering them abortion as a final solution. 

“How can they ask these women not to become pregnant, but not offer… the possibility to stop their pregnancies?” UN spokeswoman Cecile Pouilly told reporters. 

UN human rights chief Zeid Ra’ad al-Hussein said that governments should make available contraception and abortion services.

“Laws and policies that restrict (women’s) access to these services must be urgently reviewed in line with human rights obligations in order to ensure the right to health for all in practice,” he said.

But Brazil’s bishops strongly asserted yesterday that efforts should be made to eradicate the virus, not the people who may be infected by it. 

The disease is “no justification whatsoever to promote abortion,” they said in a statement, adding that it is not morally acceptable to promote abortion “in the cases of microcephaly, as, unfortunately, some groups are proposing to the Supreme Federal Court, in a total lack of respect for the gift of life.”

Honduras Cardinal Oscar Rodriguez Maradiaga has also come out strongly against the notion of “therapeutic abortions” as a response to the problem. Unlike Brazil where abortion is legal in the case of rape or health of the mother, abortion remains entirely illegal in Honduras.

“We should never talk about ‘therapeutic’ abortion,” the cardinal said in a homily at a February 3 Mass in Suyap. “Therapeutic abortion doesn’t exist. Therapeutic means curing, and abortion cures nothing. It takes innocent lives,” he said. 

While the World Health Organization (WHO) declared an international public health emergency February 1 on account of concerns over the virus, critics have pointed out, however, that not one death as resulted from the virus. Even on WHO’s own website the virus is described in mild terms. 

“It causes mild fever and rash. Other symptoms include muscle pain, joint pain, headache, pain behind the eyes and conjunctivitis. Zika virus disease is usually mild, with symptoms lasting only a few days,” the website states. “To date, there have been no reported deaths associated with Zika virus,” it added. 

Critics suspect that the crisis is being manipulated to advance an anti-human agenda on the pre-born. 

“Is Zika, actually, a hideous virus that threatens to spread uncontrollably across the world creating an army of disabled children with tiny heads and low IQ’s? Or might this be a willful misinterpretation of the scarce data to manipulate public opinion and legislatures?” wrote pro-life critic Mei-Li Garcia earlier this week.

“It becomes very clear that the publicity surrounding this story has a very little to do with medicine and a lot to do with a convenient crisis that is being used by those pushing for the legalization of abortion around the world,” she wrote.



Share this article

Advertisement
Featured Image
JStone / Shutterstock.com
Ben Johnson Ben Johnson Follow Ben

News,

Hillary’s litmus test for Supreme Court picks: They must ‘preserve Roe v. Wade’

Ben Johnson Ben Johnson Follow Ben

DERRY, NH, February 5, 2016 (LifeSiteNews) - Hillary Clinton has a litmus test for Supreme Court nominees - several, in fact. At a Democratic event on Wednesday, Clinton unveiled her criteria in selecting a judge for the nation's highest court.

“I do have a litmus test, I have a bunch of litmus tests," she said.

"We’ve got to make sure to preserve Roe v. Wade, not let it be nibbled away or repealed,” she said.

There have been over 58,000,000 abortions since the 1973 court ruling legalizing abortion in all 50 states, according to National Right to Life.

That echoes her recent call to arms speech before Planned Parenthood last month, when she stated that taxpayers must fund abortion-on-demand in order to uphold the "right" of choice.

“We have to preserve marriage equality,” Clinton said, referring to last summer's Obergefell v. Hodges case, a 5-4 ruling that redefined marriage nationwide. “We have to go further to end discrimination against the LGBT community."

Her views differentiate her from the Republican front runners. Ted Cruz has called the court's marriage ruling "fundamentally illegitimate," and Donald Trump told Fox News Sunday this week that he would "be very strong on putting certain judges on the bench that I think maybe could change things." Marco Rubio has said he won't "concede" the issue to the one-vote majority.

All Republican presidential hopefuls say they are pro-life and will defund Planned Parenthood.

Her husband, Bill Clinton, raised the makeup of the Supreme Court early last month in New Hampshire, saying it receives "almost no attention" as a campaign issue.

On Wednesday, Hillary said "the next president could get as many as three appointments. It’s one of the many reasons why we can’t turn the White House over to the Republicans again.”

Clinton said her judicial appointees must also reverse the Citizens United ruling on campaign finance and oppose a recent decision striking down a portion of the 1965 Voting Rights Act. In 2013's Shelby County v. Holder, justices struck down Section 4(b) of the act, which said that certain states and jurisdictions had to obtain permission from the federal government before changing their voting laws.

At one time, most politicians frowned upon any "litmus test" for judicial nominees, emphasizing the independence of the third branch of government. "I don't believe in litmus tests," Jeb Bush told Chuck Todd last November.

But with the rise of an activist judiciary in the middle of the 20th century, constitutionalists have sought to rein in the power of the bench.



Advertisement

Customize your experience.

Login with Facebook